Connor's Dad - Brian
  • Male
  • Houston, TX
  • United States
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Connor's Dad - Brian's Friends

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Connor's Dad - Brian's Page

Profile Information

About me:
Our son was diagnosed with DMD at the age of 2 1/2
About my family:
Our son with DMD has a fraternal twin who does not have MD. My wife and I embarking on our journey of caring for a child with DMD
Name(s) of child(ren)/individual(s) with Duchenne:
Connor
Age(s) of child(ren)/individual(s) with Duchenne:
0-3
City:
Houston, TX

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Comment Wall (8 comments)

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At 3:26pm on July 10, 2012, Ron Kohudic said…

Hi Brian,

My name is Ron Kohudic. I work at Siren Interactive, a digital agency in Chicago that is focused on understanding the needs of patients and physicians dealing with rare diseases. I am part of a small group that is doing research in order to develop new technology to help boys with DMD and their parents, caregivers and health care professionals within the community.

 

Please let us know if you would be willing to speak with one of my colleagues or I in order to help us better understand DMD from your perspective, as well as to better understand your needs or any specific areas that we could potentially assist you in treating boys with DMD.

 

Please let me know if we can contact you at your convenience.

 

Thank you for your time and cooperation in this effort.

 

Sincerely,

 

Ron

At 2:13pm on August 5, 2008, Stefanie Killian said…
Hey Brian,

It was great to meet you at conference this year. Sorry about the circumstances. How did your appointments go? Are you getting all of your questions answered? I know it is a lot to digest. You are on the right track and getting the best information out there though. I loved the pictures of the boys. Too cute!

Stefanie
At 8:56am on July 28, 2008, Donna Taylor said…
Hey Brian!
It was great meeting you and your beautiful wife at the conference! I'm so glad you were able to make it to the conference so soon after Connor's diagnosis. There is no better place to get information and meet other families to help you through this. Thanks so much for sharing all of your pictures- they are precious!! What a beautiful family you have.

Take care,
Donna
At 12:27pm on July 1, 2008, James Poysky said…
Hi Brian,

I'm back in town now if you still want to give me a call.

James Poysky
At 9:33am on June 25, 2008, Michael A. Papp said…
Brain
Thanks for the uplitting message. At times it still hard to believe that he has this disease. I have faith that a cure it out there. Your right about one thing.... We will cure our sons one way or the other.
At 9:33am on June 21, 2008, Michael A. Papp said…
Brian,
Welcome. My son Michael was just recently diagnosed. He is 27months. It still very new for my wife and I. This site does help.
At 11:54am on June 5, 2008, Laurie Paschal said…
Hi Brian!! I also have fraternal twins with only one affected by DMD. My boys will be 6 this July. Where in Houston are y'all? I'm up in Montgomery.
At 6:17pm on June 4, 2008, Jennifer Shumsky said…
I just have to say I fell in love with your picture! That is the most beautiful little man you have there! I can just imagine the giggles (from both of your sons) you get when you cover their tummy's with kisses. I think God makes our boys extra beautiful to remind us of how lucky we are to have our angels :)
 
 
 

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