"My son is 19. He will turn 20 in June. He has DMD. We got the diagnosis at age 6. we have always given him age appropriate answers. There are booklets available on the MDA website that help explain the process in children's terms that I…"
I am a retired nurse caring for my grandson who has DMD
About my family:
We are the Higginbotham family. Married for 42 years. Have 2 children and 7 grandchildren. We were legally appointed caregivers of our oldest grandson, JC, when he was 8 months old and he is now 19 years old. He was diagnosed with DMD at 6. We love to travel, our moto is if there is a will there is a way.
Name(s) of child(ren)/individual(s) with Duchenne:
Jason (JC) Higginbotham
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older
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