Brandi Cammarata's Discussions
Started this discussion. Last reply by Nida Zuberi Apr 16, 2016.
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Hello everyone! I am excited to join you all in the PPMD community. Forgive me if I'm not writing this in the correct area. I'm new and learning. Our son, Beck was diagnosed with DMD in January. It…Continue
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hi brandi did you get my message fb kick me off, have new email account so hope allow me back on
kimmy
Hi Brandi,
Its extremely hard to go through the initial diagnosis days and lots of hugs and prayers for your son and family. I can tell you from our experience about a year and half back when we got our diagnosis that joining this group and most of all going to the PPMD annual connect conference gave us a lot of information, connections, strength and hope. There are a lot of trials in pipeline and based on Beck's mutation, you might have more than one choice. Take one day at a time and stay strong as Beck needs to see you that way.