" hi brandi did you get my message fb kick me off, have new email account so hope allow me back on
kimmy"
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Brandi Cammarata
- Male
- Flowery Branch, GA
- United States
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Brandi Cammarata's Discussions
Hello
Started this discussion. Last reply by Nida Zuberi Apr 16, 2016. 3 Replies 2 Favorites
Hello everyone! I am excited to join you all in the PPMD community. Forgive me if I'm not writing this in the correct area. I'm new and learning. Our son, Beck was diagnosed with DMD in January. It…Continue
Brandi Cammarata's Page
Latest Activity
"Hi Brandi,
Its extremely hard to go through the initial diagnosis days and lots of hugs and prayers for your son and family. I can tell you from our experience about a year and half back when we got our diagnosis that joining this group and most of…"
"Hi Brandy,
My 5 year old son was just diagnosed this Thursday. I'm in shock! Never heard of it, none in my family have it. Pretty much lost right now. Just stayed up all night and researched. Really tired. Can't believe it."
"Hi Brandi,
My son Jaylen was 3.5 years old in August 2015 when he was diagnosed. Its tough getting the diagnosis, but we are trying to learn as much as possible about it. I am also not a carrier of the disease and no one in our family…"
"Brandi, we were recently diagnosed as well. Glad that you reached out to this group. If you need to talk, I am here. It helps me daily"
Hello
Hello everyone! I am excited to join you all in the PPMD community. Forgive me if I'm not writing this in the correct area. I'm new and learning. Our son, Beck was diagnosed with DMD in January. It did come back as genetic HOWEVER we have never had a family member diagnosed with any type of MD so needless to say, the news was very shocking! I am ready to fight for our boys and ready to find a cure! I just wanted to thank you all for accepting me into such a wonderful group!
Profile Information
- About me:
- I am a mother of two beautiful teenage daughters and a 5 year old son. They are my life.
- Name(s) of child(ren)/individual(s) with Duchenne:
- Beck Cammarata
- Age(s) of child(ren)/individual(s) with Duchenne:
- 4-6
- City:
- Flowery Branch
- State:
- Georgia
Comment Wall (2 comments)
- At 3:32pm on September 20, 2017,
Kim Watters said…
hi brandi did you get my message fb kick me off, have new email account so hope allow me back on
kimmy
- At 12:43am on April 21, 2016,
Alpa Khushalani said…
Hi Brandi,
Its extremely hard to go through the initial diagnosis days and lots of hugs and prayers for your son and family. I can tell you from our experience about a year and half back when we got our diagnosis that joining this group and most of all going to the PPMD annual connect conference gave us a lot of information, connections, strength and hope. There are a lot of trials in pipeline and based on Beck's mutation, you might have more than one choice. Take one day at a time and stay strong as Beck needs to see you that way.
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