Welcome to PPMD we welcome all support, I have an 8 year old affected and a 6 yr old boy who is not. I had a touching experience today, My son was only diagnosed in March this year so is all very new to us - I did a presentation to the Grade 5 and 6 kids at our primary school today and their response was amazing. The year 6 kids in leadership group (school captains) asked if it was Ok if they did some fundraising to help with research - out of the mouths of babes. I wanted to get up and hug them all.
I think it is sooo awesome that you are on this sight!! I KNOW that it means a lot to your sister and her sons and daughter for you to be part of this community and actively showing that you support them in this fight!! The rest of us are grateful as well, because the more people we have on our side, the better for our sons! Thank you!! Look forward to getting to know you better.
Welcome Bobbie. I'm so glad that you are here to help support all of us that have to deal with disease on a daily basis. As well as, those of us who have lost a loved one. I'm one of the ones that lost my 16 year son to this disease last year. There are several us that have lost our battle for our families but continue to hope and pray for a cure for the rest of these beautiful boys.