PPMD Community

Bobbie Ford Female San Antonio, Texas United States: Favorite

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Bobbie Ford's Friends

About me:: I am a nurse that has watched her sister deal with this disease up close and would love to see it wiped off the face of this earth.

About my family:: My sister has 2 living boys that are afflicted with Duchennes MD and had another son who died as a result of the disease, her daughter is a carrier and I have seen the heartache this disease causes.

Name(s) of child(ren)/individual(s) with Duchenne:: Josh Flemming, Justin Flemming

At 2:40am on August 26, 2008, Jane Williams said…: Hi Bobbie

Welcome to PPMD we welcome all support, I have an 8 year old affected and a 6 yr old boy who is not. I had a touching experience today, My son was only diagnosed in March this year so is all very new to us - I did a presentation to the Grade 5 and 6 kids at our primary school today and their response was amazing. The year 6 kids in leadership group (school captains) asked if it was Ok if they did some fundraising to help with research - out of the mouths of babes. I wanted to get up and hug them all.

Cheers

Jane

At 1:36am on August 26, 2008, Jill Keenan said…: I think it is sooo awesome that you are on this sight!! I KNOW that it means a lot to your sister and her sons and daughter for you to be part of this community and actively showing that you support them in this fight!! The rest of us are grateful as well, because the more people we have on our side, the better for our sons! Thank you!! Look forward to getting to know you better.

Jill (a fellow Texan=)

At 10:14pm on August 25, 2008, Ana said…: Welcome Bobbie. Thank you for supporting our boys and our families!!!

At 1:17pm on August 25, 2008, Jenny Garofalo said…: Welcome Bobbie and thank you!
Jenny G

At 1:16pm on August 25, 2008, Mary Sahagun said…: Hi Bobbie,

Having the support of family means the world to us parents. Welcome!

Mary

At 10:00am on August 25, 2008, Kari said…: Welcome Bobbie to PPMD Community and for your support of this disease to your family and others.

At 9:58am on August 25, 2008, Colin McKenzie said…: Dear Bobbie

It is so encouraging to see family members supporting each other, as a parent of a DMD boy, I can say the network and family support structure is of utmost importance.

Keep in touch.

Colin

At 9:41am on August 25, 2008, Kimberly Foernsler said…: Welcome Bobbie. I'm so glad that you are here to help support all of us that have to deal with disease on a daily basis. As well as, those of us who have lost a loved one. I'm one of the ones that lost my 16 year son to this disease last year. There are several us that have lost our battle for our families but continue to hope and pray for a cure for the rest of these beautiful boys.