Blazena Kaderabkova
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Blazena Kaderabkova's Discussions

Ataluren

Started Mar 22, 2011 0 Replies

Do you know about any progress of Ataluren in Europe?

DELOS WEBINAR

Started Mar 3, 2011 0 Replies

Did you anybody take part in the webinar? Can you please shortly me know whats new? Thank you.

Ataluren

Started this discussion. Last reply by Angela Bourgeois May 13, 2011. 18 Replies

Do you know anything about ataluren and their next steps?

 

Blazena Kaderabkova's Page

Profile Information

Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Czech Republic

Blazena Kaderabkova's Blog

Ataluren study

Posted on August 20, 2011 at 12:28pm 6 Comments

The study of previously treated boys nmBMD/DMD with Ataluren was prolonged for the next one year, see http://clinicaltrials.gov/ct2/show/NCT01247207?term=ataluren&rank=8

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At 10:03am on August 22, 2011, Clare Harper said…
Hi Blazena,i am so down about this today, i wish ptc would talk a bit more about their plans for these trials.There has to be a way to get access to this drug when they are at stage 3 trials, iwas planning to go the states with my son if it comes out there first.
 
 
 

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