Wife of Sayre, Mother of Steven with Duchenne Former textile designer. Have 2 other children
Like to knit for relaxation and play bridge when time allows. The stress of our lives gets to me more often lately. I try to stay strong for my family.
About my family:
My family is my life. My daughter, Leila, a teacher is raising money now for Duchenne PPMD My son Evan is away at college and Steven is home with us. My husband Sayre is a very special man. We live in Manhattan and are havin great difficult finding good competent nurses. Any help would be greatly appreciated.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older
New York, NY
Comment Wall (1 comment)
You need to be a member of PPMD Community to add comments!