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Bill Reynolds
- Male
- Collingswood, NJ
- United States
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Invitation for attendees of Connect Conference 2009
Started Jun 16, 2009 0 Replies 0 Favorites
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Bill Reynolds posted a discussionInvitation for attendees of Connect Conference 2009
Dear Parents,You may have seen past notices from us on the Community Site inviting you to speak to us for a research study. We (Skip Nelson, Bill Reynolds, and Diana Harris) are researchers at The Children’s Hospital of Philadelphia (CHOP), and we will be attending the upcoming PPMD conference in Atlanta to conduct interviews with interested parents of children with DMD (any age). We would also like to talk to adolescents (aged 13-17) with DMD. Our study is about community members’ opinions of…See More
Profile Information
- About me:
- I'm a researcher at Children's Hospital of Philadelphia and Stockton College (NJ), and I am working on a project that involves interviews with boys with DMD and their parents. I would like to participate in the PPMD Community to become as informed as possible about issues that are important to community members.
- City and State:
- Collingswood, NJ
- Country:
- USA
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If you take a look at the Ad. Group here at PPMD I think you will find it is mostly parents of teenagers with DMD.
With regard to the adolescent group you are starting, you might want to consider going to the groups section here at PPMD and joining for the adolescent one. Just a thought.
cheryl
I sent Diana a message to say we are interested in participating in your study/interviews. So far I haven't heard anything back. Let me know if we can be of assistance.
cheryl
I recieved your message and I appreciate your response very much. I will respond back a little later. I just wanted to send a quick note to thank you for replying.
Take care,
Julie
Yes, I did see Ryan's post and then went to check on you. I am looking forward to whatever can be done to help and assist. If you are ever in northern California please let me know. I do travel to southern California on occassion.
Take care,
Julie
I did not know you had joined! Welcome. Please let me know if you need anything.
Julie
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