Hi Bill, my son Milo goes to camp with your son! Glad to see you on here. We have a group of N Cal Duchenne (mostly Sac and Bay Area) families who get together a couple times a year to hang out, with our kids, if you're interested. Will you be at the BBQ? Maybe I'll introduce myself.
Hi Bill,
Glad you joined. My son is 9 and we found out about 2 years ago also. We live in Brookings. It's about 7 hours North of you. We go to Cinncinatti now for Kians care.
Christine
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Hi Bill, my son Milo goes to camp with your son! Glad to see you on here. We have a group of N Cal Duchenne (mostly Sac and Bay Area) families who get together a couple times a year to hang out, with our kids, if you're interested. Will you be at the BBQ? Maybe I'll introduce myself.
My wife and I are doing some fundraising this May for a charity in Canada called Jesse's Journey. They fund research into DMD.
Christine
Glad you joined. My son is 9 and we found out about 2 years ago also. We live in Brookings. It's about 7 hours North of you. We go to Cinncinatti now for Kians care.
Christine