Even though we didn't get to talk much, it was nice running into you and Jason at CCHMC. I hope all of his appointments went well. I posted an update in my blog about Bradley's appointments. So neat seeing the pictures of the tiger cub in your pictures.
I noticed your family and a couple of others will be at Cincinnati Children's the same week that we will be there for our son's appointments. Maybe we will get a chance to meet you all.
I just noticed you were close to me, I am in Dowagiac, and did not know there was anyone this close to me with DMD. We just went to Ohio in September and found Blake has the non-sence stop codon mutation and would have been able to participate in the PTC 124 study but we found out too late, as the study is already closed..=( Story of my life!! But I just wanted to say hi since we were so close!!
So sorry it took me so long to respond!!! We are going to be there the same time you are. We will definitely have to look for you and Jason. What is your son's deletion?
Hey there. That new little guy is awfully cute! How old is Ty now? I am thinking a year, right?
We are good. Kyle has just started on steroids so he is running all over the place. On the other hand, Kev is beginning to slow down a bit. I am trying to call MESA to look at a stair glider for him to get up and down the steps. Kev told us it was time to get one.
Is Heather back to work full time? You guys have to be busy with 2!!
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Even though we didn't get to talk much, it was nice running into you and Jason at CCHMC. I hope all of his appointments went well. I posted an update in my blog about Bradley's appointments. So neat seeing the pictures of the tiger cub in your pictures.
I noticed your family and a couple of others will be at Cincinnati Children's the same week that we will be there for our son's appointments. Maybe we will get a chance to meet you all.
We are good. Kyle has just started on steroids so he is running all over the place. On the other hand, Kev is beginning to slow down a bit. I am trying to call MESA to look at a stair glider for him to get up and down the steps. Kev told us it was time to get one.
Is Heather back to work full time? You guys have to be busy with 2!!
I have a 14-1/2 year old son w/ DMD and we live in Tekonsha, MI.
Tina