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Benjamin Dellay
  • Male
  • Saint Joseph, MI
  • United States
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  • Shea Holbrook
  • Anessa Fehsenfeld
  • Emily
  • Celeste Dudley
  • Michelle
  • Tina Klingaman
  • Keith Van Houten
  • DeAnne Friar
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Profile Information

About me:
Jason (10, DMD) and Ty (4).
About my family:
My wife Heather and two boys Jason and Ty live in Saint Joseph.
Name(s) of child(ren)/individual(s) with Duchenne:
Jason
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Saint Joseph, MI

Comment Wall (7 comments)

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At 10:43pm on July 23, 2011, Lisa Jones said…

Even though we didn't get to talk much, it was nice running into you and Jason at CCHMC. I hope all of his appointments went well. I posted an update in my blog about Bradley's appointments. So neat seeing the pictures of the tiger cub in your pictures.

At 7:29pm on June 27, 2011, Lisa Jones said…

I noticed your family and a couple of others will be at Cincinnati Children's the same week that we will be there for our son's appointments. Maybe we will get a chance to meet you all.

At 12:59pm on January 9, 2009, Celeste Dudley said…
I just noticed you were close to me, I am in Dowagiac, and did not know there was anyone this close to me with DMD. We just went to Ohio in September and found Blake has the non-sence stop codon mutation and would have been able to participate in the PTC 124 study but we found out too late, as the study is already closed..=( Story of my life!! But I just wanted to say hi since we were so close!!
At 11:38pm on November 12, 2008, Emily said…
So sorry it took me so long to respond!!! We are going to be there the same time you are. We will definitely have to look for you and Jason. What is your son's deletion?
At 9:58pm on November 6, 2008, DeAnne Friar said…
Hey there. That new little guy is awfully cute! How old is Ty now? I am thinking a year, right?
We are good. Kyle has just started on steroids so he is running all over the place. On the other hand, Kev is beginning to slow down a bit. I am trying to call MESA to look at a stair glider for him to get up and down the steps. Kev told us it was time to get one.
Is Heather back to work full time? You guys have to be busy with 2!!
At 12:03pm on November 4, 2008, Michelle said…
Welcome to MA families! There's also a New England Families group on PPMD. Check it out.
At 2:42pm on June 5, 2008, Tina Klingaman said…
Hi Benjamin,

I have a 14-1/2 year old son w/ DMD and we live in Tekonsha, MI.

Tina
 
 
 

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