I lost a brother to Duchenne in 1970. I'm married with 3 sons and 1 daughter. I work as a research nurse at Washington University in St Louis. I have 2 healthy grandson, ages 6 and 14.
About my family:
My oldest son passed in 1998 with Duchenne. My youngest son has Duchenne and has been trached and on a vent for 4 1/2 years. He is doing well, though. My daughter's baby due in Feb. has Duchenne. I have one healthy son. My husband is retired and cares for our son while I work.
Name(s) of child(ren)/individual(s) with Duchenne:
Bill Babel, John and Joe McNiff and Baby Kopp (Name not decided yet)
Age(s) of child(ren)/individual(s) with Duchenne:
0-3, 19 or older
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