I have two son and both of them have DMD.
One is 4.5 and the other is 2 years old. We have no issues right now. But we have elevated CK values(40.000)
We had a gene test on my elder son and the result is point mutation on exon 39. Details are c.5586+87dupTC(IVS39nt+87insTC)
We cannot find anyone with the same mutation and hoping to find one.