koksal
  • Male
  • Istanbul
  • Turkey
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  • Moein
  • imdat kalemci
 

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Profile Information

About me:
My son has DMD. He has deletions 44-47 exons. My web site : www.duchennemd.com
About my family:
I have two child.
Name(s) of child(ren)/individual(s) with Duchenne:
Baris
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older
City:
Istanbul

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At 4:33pm on June 22, 2011, Moein said…

Hi,

Could you please let me know if Deflazacort is available in Turkey?

Thank you very much

At 9:55am on July 5, 2009, Bill Reynolds said…
Thanks for your note, Koksal. We're continuing to interview adolescents between the ages of 13 and 17 to learn their opinions about clinical trials using a gene transfer process that someday may be available. (A gene transfer approach to treating DMD is not currently available for human trials). If your son is interested and can communicate reasonably well in English, we could begin an email interview with him any time. If you send me an email to my university address (william.reynolds@stockton.edu), I will send you some documents that describe in more detail the issues we would like to discuss. If your son has opinions about these issues and would like to participate in our research through email, I would be happy to include him.

Sincerely,

Bill
 
 
 

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