Barb Aleman
  • Female
  • Maple Ridge, BC
  • Canada
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  • Ana
  • Kimberly Foernsler
  • Tanya Fleming
  • Mary Sahagun

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Profile Information

About me:
I'm a single mom of 3, all of whom have now died. My passion is caring for children with severe disabilties. I am also very involved in a group for parents of children with Hydranencephaly which is what my daughter had. I lead a support group, maintain a website and other activities to raise awareness of this disorder.
About my family:
Ben, born to Heaven 1/91, Kayda who had hydranencephaly (12/2/88-6/23/00) & Trevor (2/2/92-12/15/08) who had DMD

Kayda & Trevor were both foster children. I am waiting for a new child to care for,

I also have 2 cats and a dog.
Name(s) of child(ren)/individual(s) with Duchenne:
Trevor
Age(s) of child(ren)/individual(s) with Duchenne:
13-18
City:
Maple Ridge, BC

Comment Wall (6 comments)

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At 9:42pm on January 17, 2010, Ana said…
Hi Barb - you have been on my mind. Trevor's 1st anniversary was last month. My thoughts are with you. How are you?
At 6:46pm on March 11, 2009, Ana said…
Hi barb - I was wondering how you were doing. Have not heard from you in a while.
hugs
Ana
At 1:41pm on January 14, 2009, Ana said…
Hi Barb

I can't wait till you post all the pictures of Trevor here on this site! I have to put up more of Jeffrey. I just have not gotten around to it yet. I'm quite new on this site and still feel like a nerd feeling my way around.

Love ya!
At 10:49am on January 13, 2009, Ana said…
Hi Barb - welcome my friend! I look forward to your postings and stories about Trevor.
hugs
Ana
At 12:11am on January 13, 2009, Gisel Rivero said…
Hello Barb,
I am so glad you joined hope you find all the support you need.
xoxo,
gisel
At 9:51pm on January 12, 2009, Mary Sahagun said…
Hello Barb,

Nice to see you joined, I hope you find it as helpful as I have.

Mary <3
 
 
 

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