I'm a single mom of 3, all of whom have now died. My passion is caring for children with severe disabilties. I am also very involved in a group for parents of children with Hydranencephaly which is what my daughter had. I lead a support group, maintain a website and other activities to raise awareness of this disorder.
About my family:
Ben, born to Heaven 1/91, Kayda who had hydranencephaly (12/2/88-6/23/00) & Trevor (2/2/92-12/15/08) who had DMD
Kayda & Trevor were both foster children. I am waiting for a new child to care for,
I also have 2 cats and a dog.
Name(s) of child(ren)/individual(s) with Duchenne:
Trevor
Age(s) of child(ren)/individual(s) with Duchenne:
13-18
City:
Maple Ridge, BC
Comment Wall (6 comments)
You need to be a member of PPMD Community to add comments!
I can't wait till you post all the pictures of Trevor here on this site! I have to put up more of Jeffrey. I just have not gotten around to it yet. I'm quite new on this site and still feel like a nerd feeling my way around.
Comment Wall (6 comments)
You need to be a member of PPMD Community to add comments!
Join PPMD Community
hugs
Ana
I can't wait till you post all the pictures of Trevor here on this site! I have to put up more of Jeffrey. I just have not gotten around to it yet. I'm quite new on this site and still feel like a nerd feeling my way around.
Love ya!
hugs
Ana
I am so glad you joined hope you find all the support you need.
xoxo,
gisel
Nice to see you joined, I hope you find it as helpful as I have.
Mary <3