B.P Ravi
  • Male
  • Koppa karnataka India
  • India
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B.P Ravi's Friends

  • djamel fathi
  • Deb Robins
  • Tina

B.P Ravi's Discussions

Creating awareness about DMD carriers

Started Mar 11, 2009 0 Replies

specific drug for different DMD

Started this discussion. Last reply by MicahsDaddy Jul 21, 2008. 1 Reply

specific drug for different DMD

Started Jul 15, 2008 0 Replies

 

B.P Ravi's Page

Profile Information

About me:
I am a forestry professional based in south western part of India. primary job is the management of natural forests as well as raising plantation of forest crops with the active involvement of local community. conservation of western ghat forests and wildlife is not only a challenge but we think it as a privilege.
About my family:
Two kids kusuma 11 years and kiran 8 years. my wife is sunitha . she is a house wife. kiran is more jovial than kusuma who is withdrawing type but very keen observer. kusuma enjoys playing out door games as well as music and song. kiran enjoys computer and playing with his friends
Name(s) of child(ren)/individual(s) with Duchenne:
Kiran
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Koppa Chikmagalur (dist) Karnataka pin-577126

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Comment Wall (5 comments)

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At 6:17am on May 13, 2010, RAKTIM SINGH said…
Hi,
My kid 5.9 year old has been diagnosed with DMD. He has exon 46 to 50 deletion. I am trying to form group of parents in India. I am in bangalore.
My mail is raktims@infosys.com. Trying to form group for Indian parents.
At 8:16pm on January 14, 2009, Deb Robins said…
Hi, I look forward to meeting you. I am accompanying the Australian speaker in the program and am a director, former president and webmaster of our national parent project. Our new name is Duchenne Foundation however. I am looking forward to your conference so much and finally meeting Ruchika and the rest of our global family. I have been trying to spread the word as best as I can from Oz. I look forward to meeting. Your job sounds like an adventurous and unique lifestyle for your family. Let me know if you need something from Oz? I have to survive preparations for my son's 21st birthday party before I leave.
At 6:01am on January 4, 2009, djamel fathi said…
Very nice family,pray and hope for our kids.
At 9:07pm on January 3, 2009, Tina said…
Thank you for sharing your photos. I was showing my son, who is almost 8 years-old and has Duchenne md your photos. I told him that your son has DMD and pointed to him. He said, "I could tell he has muscular dystrophy." I asked, "How?" and he replied with, "It's always the short one." I asked him if he knew why boys with DMD are short and he said it was because of the medicine "we take." So, sharing your photos with my son also gave us the opportunity to discuss his disease.
You have a beautiful family.
At 12:01am on January 3, 2009, Deb Robins said…
You probably already know much about this upcoming DMD conference in our region, but just in case, here's a link to most details: http://tinyurl.com/bangaloreFeb09

Best regards, Deb
 
 
 

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