B.Ayers
  • Female
  • Reagan, TN
  • United States
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B.Ayers's Discussions

Need info

Started this discussion. Last reply by Kathi Kinnett Apr 20, 2015. 1 Reply

I've always considered myself very educated when it came to DMD, however, with the progression my son has experienced in the last 6 months and the decisions I'm facing I feel overwhelmed and…Continue

 

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Kathi Kinnett replied to B.Ayers's discussion Need info
"Hi - I'm happy to help in any way that i can.  Can you tell me where Cameron goes for care? Kathi"
Apr 20, 2015
B.Ayers posted a discussion

Need info

I've always considered myself very educated when it came to DMD, however, with the progression my son has experienced in the last 6 months and the decisions I'm facing I feel overwhelmed and uneducated. I'm looking for info on what other parents do when the bowels are weakened, aspiration begins, and the use of trunk muscles are severely affected. Cameron's lung function is to low to put him to sleep to put a colostomy bag in. Any advice or info on how other parents felt with this is greatly…See More
Apr 15, 2015
B.Ayers is now a member of PPMD Community
Apr 15, 2015
B.Ayers favorited PPMD's group Teenagers (age 13-18)
Apr 14, 2015

Profile Information

About me:
Mother of 13yr old with duchenne
Name(s) of child(ren)/individual(s) with Duchenne:
Cameron
Age(s) of child(ren)/individual(s) with Duchenne:
13-18
City:
Reagan
State:
Tn

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