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Azucena Lopez de Nava
  • Female
  • Chula Vista, CA
  • United States
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Azucena Lopez de Nava's Friends

  • Jay Griffin
  • Shelly
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Azucena Lopez de Nava's Discussions

Ataluren

Started this discussion. Last reply by Antonio Castro Sep 18. 3 Replies

Today I received a letter from California children services denying services for my son because he is in the trial Ataluren , they said he is no longer eligible to receive services from CCS because…Continue

 

Azucena Lopez de Nava's Page

Latest Activity

Jay Griffin replied to Azucena Lopez de Nava's discussion Ataluren
"Azucena, I am glad that it is working... Can you provide details? "
Mar 2, 2016
Shelly replied to Azucena Lopez de Nava's discussion Ataluren
"I'm so sorry to hear about the letter you received. Sad that if one door is open for us .. Other will be closed. But I am glad that you are on right track in the right hands. Really good to hear that ataluren is working! Blessings to your cute…"
Mar 1, 2016
Azucena Lopez de Nava posted a discussion

Ataluren

Today I received a letter from California children services denying services for my son because he is in the trial Ataluren , they said he is no longer eligible to receive services from CCS because he is in the trial ,Ataluren is working!!See More
Mar 1, 2016
3 Comments
Azucena Lopez de Nava is now a member of PPMD Community
Aug 20, 2014
Welcome Them!

Profile Information

About me:
My name is Azucena , Im from Mexicali,Mexico, Im living in San diego for 16 years , Im a person who Loves God, and have a HOPE!!!!
About my family:
Im mother of 2 beautiful children's , Suzelle she is 11 and my Ramiro is 9 he was diagnosed 3 years ago.
and my husband Ramiro we start this journey together!!!
Name(s) of child(ren)/individual(s) with Duchenne:
Ramiro Urrea
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Chula Vista
State:
CA

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