I am a 25 year-old mom of 2 wonderful children. I have been married for 5 years to my husband, Ronny.
About my family:
My 2 year-old daughter, Addisyn, was diagnosed at birth with pseudohypoaldosteronism type 1, which is a hormone deficifency. Her body can not regulate her sodium and potassium levels on her own, which can lead to be very serious. My 6 year-old son, Preston, was diagnosed at 9 months old with Glycogen Storage Disease Type 9, which a liver disease that causes an enlarged liver and muscle weakness. Then on March 30th of 2009 we received the devasting news that our son was diagnosed with Duchenne Muscular Dystrophy also. Like all other families we were and still are floored. In a state of utter shock to hear yet another diagnosis, yet another disease, and this time a fatal one. At this point we are just trying to find ourselves in the midst of all our grief and loss, yet still wanting and searching for what to do to help find a cure.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
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