Anup Kalra
  • Male
  • London, ON
  • Canada
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Anup Kalra's Discussions

AVI Eteplirsen Trial

Started this discussion. Last reply by arnold Jun 15, 2011. 1 Reply

AVI Biopharma reported delay in the initiatioin of the phase II trial: AVI BioPharma announced that the…Continue

 

Anup Kalra's Page

Profile Information

About me:
I am working with IBM. Recently relocated to Canada.
Name(s) of child(ren)/individual(s) with Duchenne:
Kshitij Kalra
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
London, ON

Comment Wall (8 comments)

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At 7:23am on November 18, 2014, DEEPAK ARORA said…

SIR MY CONTACT NUMBER IS +91-9999408485 PLEASE CONTACT ME ONCE YOU SEE THIS..!!

At 10:02pm on June 30, 2014, Nirmal Khadka said…

I have MD self.i'm working for Poor MD here hoping to find good medical care for all tho still it is struggling time for us.

At 2:24am on November 15, 2013, Rahul Singh said…
Hello Mr. Anup,
My son has been diagnosed with DMD. He is Athrv, age 3 and we stay in Gurgaon. Was just wondering if it is possible to get in touch to understand more about DMD management and difference in line of treatment.. here in India Vs in US/canada. Thanks. Regards, Rahul Singh.
At 7:13am on December 6, 2011, Rajiv Pandey said…

My Lovely son Ishan diagnosed with DMD at age of 7 yrs preasently we are living in Kanpur.

my contact No. is 9450061272

At 12:42am on October 15, 2011, Yogesh Kadyan said…

Dear Mr. Kalra,

 

I want to get in contact with you to get updated on the exon trial course. May God shower his love and affection on you kid.

 

Regards,

Yogesh

At 4:13am on September 29, 2011, Yogesh Kadyan said…

Dear Mr. Kalra,

My son walks with heels slightly raised but walks properly when reminded but is quite active otherwise, goes outdoors. I give him Nurtilite once daily and do his stretching (as told by physical therapist). What more should be done, plz advise. How is you son doing and what do you do for him. What r the possibilities u see. I got to know about Acceleron pharma currently condulting a clinical trial for phase 3 (after their product was banned in Canada due to side effects of gum bleeding, dilation of small blood vessels, etc though they were gone after discontinuation of treatment). The study might conclude in the second half of 2012.  They claimed to restore the muscle tissues and prevent further loss by their product. Kindly share me your experience in the care of your child. I shall be thankful to you.

 

Regards,

Yogesh

At 11:21am on September 28, 2011, Yogesh Kadyan said…

Hello Mr. Kalra,

My son aged 5-1/2 years has also been diagnosed with 49-50 deletions. His last CPK level about 3 months back was 23,551 which was too much high. Also he has positive Gower's sign and has difficulty climbing stairs.  He is undergoing a homeopathic treatment from today itself.  I do not believe in steroidal treatment as given by most hospitals, yet there is no cure, so why make the child suffer/detiorate. I hope this will improve/stabilize his health.  I shall be thankful to you if you give me any updated info on DMD treatment. My contact number is 9818798901.

 

Regards,

Yogesh Kadyan

At 12:40pm on April 29, 2011, RAKTIM SINGH said…

Hi Anup,

I am working at Infosys, bangalore. My son is diagnosed with DMD. ( As of now report says exon 46 to 50 deletion). My contact is 9945225084.

 
 
 

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