Anthony DeVergillo
  • 26, Male
  • Bedminster, NJ
  • United States
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Anthony DeVergillo's Friends

  • Jacob Gapko
  • Colin Werth
  • Mario Damiani
  • Kanch Randhawa
  • Patti Frank
  • Bob McDonald
  • Beverly DeVergillo
  • Michael
  • Kathleen Cacciaguerra
  • Pat Furlong
  • Christine Piacentino
  • Jenny Garofalo
  • Brian Denger
  • Stephanie Matthes
  • Kimberly Galberaith

Anthony DeVergillo's Discussions

MDA Camp cut off age change Petition

Started this discussion. Last reply by Beverly DeVergillo Sep 5, 2008. 3 Replies

 

Anthony DeVergillo's Page

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Anthony
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older
City:
Bedminster
State:
New Jersey

Anthony DeVergillo's Blog

Awakening From The Dream

Posted on March 14, 2015 at 10:30am 2 Comments

I close my eyes and the Dream begins…

In my Dream it is morning and I am lying in bed under the covers. I look at the clock and realize that I overslept and am going to be late for school! But there is no nurse there to help. So I try to lift up my hand and for the first time in over a decade it moves and I yank the covers off of me. Now what? I…

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At 3:07pm on July 10, 2012, Ron Kohudic said…

Hi Anthony,

My name is Ron Kohudic. I work at Siren Interactive, a digital agency in Chicago that is focused on understanding the needs of patients and physicians dealing with rare diseases. I am part of a small group that is doing research in order to develop new technology to help boys with DMD and their parents, caregivers and health care professionals within the community.

 

Please let us know if you would be willing to speak with one of my colleagues or I in order to help us better understand DMD from your perspective, as well as to better understand your needs or any specific areas that we could potentially assist you in treating boys with DMD.

 

Please let me know if we can contact you at your convenience.

 

Thank you for your time and cooperation in this effort.

 

Sincerely,

 

Ron

At 12:02am on November 10, 2011, Julie Garcia said…

Thank you for the friend request!

At 12:05pm on June 30, 2011,
Staff
Pat Furlong
said…

Hey Anthony,  I love the photo and your website is amazing.  I'll look forward to seeing you next week.

Pat

At 8:43pm on June 29, 2011, Andrea Cleary said…

Anthony,

Cool!!! Your web site Anthonysabilities is fantastic. You go man!

You also look pretty hot in a tux. ;-)

I bookmarked your site so I can read every single entry. I was on the verge of trying somethng new in life, and you just helped give me the nudge. Thanks. I am reading up on Buddhism, so I was especially pleased to see your video and quotes from the Dalai Lama. I think Buddhism can help all of us struggling with Duchenne.

Keep it coming Anthony,

Andrea in Montreal

At 7:39am on August 27, 2008, Sabrina said…
Hi Anthony,
my son Martin, 10, also have Duchenne. I hope he also will develop a “never give up” attitude in his life! Kathleen is right, guys like you are an inspiration for our kids.
Ciao from Italy
Sabrina
At 7:19pm on June 7, 2008, Lisa Jones said…
Hi Anthony! Welcome to the community site. I really like your page.
At 11:33am on June 6, 2008, Kathleen Cacciaguerra said…
Hi Anthony,
Great job, I am so pround to call you a friend. You are an inspiration to Christian as well as other boys.
Keep up the good work.
Kathleen
 
 
 

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