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Annie
  • Female
  • Victoria
  • Australia
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  • Deb Robins
 

Annie's Page

Latest Activity

Annie and Deb Robins are now friends
Dec 11, 2011
Deb Robins left a comment for Annie
"Hi Annie,  we may have other parents near you in Duchenne Foundation, Australia. Drop me an email  deborah.robins@duchennefoundation.org.au  if you want me to help you find some local families to you with young children, am thinking…"
Dec 10, 2011
Annie joined Deb Robins's group
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Aussies - Duchenne Foundation

Duchenne Foundation can be found at www.duchennefoundation.org.auJoin us to raise awareness in Australia.See More
Dec 10, 2011
Annie commented on Dee's group Mom's Cafe
"Hi Our son has just recently been dx with md - not duchenne awaiting further results form the biopsy but probably outliers/severe BMD. So needed to find a site like this  "
Dec 10, 2011
Annie joined Dee's group
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Mom's Cafe

A group for Mom's who like to vent and talk about life with DMD kids
Dec 10, 2011
Annie commented on PPMD's group Becker Parents
"Hi Our son has just been diagnosed with MD we are waiting further tests from the biopsy but not duchenne, probably outlier or severe BMD - prediction is that he may need wheelchair assistance at 16- 18 years of age. Such a relief to find some people…"
Dec 10, 2011
Annie joined PPMD's group
Dec 10, 2011
Annie is now a member of PPMD Community
Dec 9, 2011

Profile Information

About me:
38 year old wife and mother of two children. I am a peadiatric nurse and a new gym junkie! Getting fit is my new life goal!
About my family:
I am married with two children a boy 5 and girl 4
Name(s) of child(ren)/individual(s) with Duchenne:
Z
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Victoria

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At 7:13am on December 10, 2011, Deb Robins said…

Hi Annie,  we may have other parents near you in Duchenne Foundation, Australia. Drop me an email  deborah.robins@duchennefoundation.org.au  if you want me to help you find some local families to you with young children, am thinking of a couple of nurses I know of. When you get all your tests back, please register your son on our national registry.  http://www.nmdregistry.com.au/dmd/  Take care of yourself.  Deb

 
 
 

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