PPMD Community

Anneke Haku 42, Female Minneapolis, MN United States: Favorite

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Anneke Haku's Friends

About my family:: 3 Precocious children:

One Intuitive
One Stoic
One a bit of a grandstander

A Husband who is a tender heart

Mother who is a fighter

Sister who is a philosopher

Mother-in-law who is a protector

At 6:53pm on March 30, 2009, Rebecca B said…: Hi,
I am new to this site as I am from the UK. I am mom to George, age 5, with DMD.
I have some amazing friends who are cycling 20,000 miles for Duchenne. Starting in Halifax and cycling via Augusta and Rochester, Buffalo, Chicago, Mineapolis...Vancouver down to SF, LA and then all the way down to Argentina.

Please join the group "Cycle the Americas". I think they will be cycling near you - if are interested in finding out more or meeting them on their journey (they really want to meet local communities and DMD families) please get in touch.
I spend every spare second campaigning for research and awareness of DMD - would be great to have you on board with this adventure!

Best wishes
Rebecca Bellinger

www.cycletheamericas.org

At 9:28pm on February 14, 2009, Laurie Hoovestol said…: Hello! I wanted to welcome you! I am also a new member and learning my way around. My family lives in West Fargo, ND, so not to far from you. What a cutie your son is :-)

At 8:01am on February 10, 2009, Jennifer Shumsky said…: Hi Anneke! I think we met at the MDA seminar a couple months ago. It's good to see you made it over here. I hope you and your husband are doing ok. If you still have my email address and would like to get together sometime let me know, otherwise I can send it to you again.

At 3:57am on February 10, 2009, Sharyn Thompson said…: Hi Anneke,

Welcome to PPMD, this is the best DMD site I know of for any sort of advice or support! I have met many wonderful and helpful and sympathetic people here. I have been a member since my 4 year old son was diagnosed in 2006 - they helped me through my darkest days!

Anyway, just wanted to say hi and welcome and that you have a beautiful son! I look forward to getting to know you!

Sharyn.

At 8:54am on February 8, 2009, Stephanie Fielder said…: Welcome to PPMD, my son Hayden was diagnosed in July at 22 months old. This community of supports is wonderful.