I live in the Boston area. I am a former archaeologist who makes a living as a reference librarian at a small liberal arts college in Boston. I love my family and enjoy spending time with them. If I could get off my rear and do something, I would rediscover my art abilities and take a watercolor class. And if money grew on trees I would stay in school FOREVER and gather many more degrees. I love learning!
About my family:
My son William was diagnosed with Becker's MD in Janurary 2007. Since then, he seems to be tracking more along the lines of Duchenne MD. William started on Deflazacort in April 2009 and we think we are starting to see some benefits (it's now August/September 2009). Fingers crossed. My husband has rediscovered running and plans on running for the Jett foundation team in a Dualathon.
Name(s) of child(ren)/individual(s) with Duchenne: