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Anna Mossiat
  • waterford
  • Ireland
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Anna Mossiat's Friends

  • PAULA KERR
  • stephen beggs
  • Richard Darienzo
  • Clare Harper
  • Andrea Cleary
  • Kira Mullaly
  • Moein
  • damien lynch
  • Jason Darienzo
  • lisa burke
  • Thomas Hoel

Anna Mossiat's Groups

Anna Mossiat's Discussions

When to start steroids if no signs of decline?

Started this discussion. Last reply by Andrea Cleary Oct 5, 2012. 7 Replies

Hi!I know there have been many discussions about steroids, and I think we are going to start them soon, Jason Darienzo you convinced me :), but a lot of parents seemed to have started them when the…Continue

Heart scar tissue into healthy muscle

Started this discussion. Last reply by Anna Mossiat May 19, 2012. 2 Replies

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Idebenone -different forms available?

Started this discussion. Last reply by lisa burke May 29, 2012. 4 Replies

Hello everyone!I just wanted to know whether anybody knew if there was different forms of Idebenone available, liquid or other, I'm currently mixing it with fresh orange juice, but there are very…Continue

Idebenone and speech?

Started this discussion. Last reply by Peter Apr 18, 2012. 7 Replies

Dylan has been on Idebenone for 7 weeks now and I have noticed a great improvement in his speech.  It is very fluid now, not that it was bad before but it could come "broken" sometimes, especially…Continue

 

Anna Mossiat's Page

Profile Information

About me:
Optimistic mummy :) , studying for a Masters and enjoying life with her little boy
Name(s) of child(ren)/individual(s) with Duchenne:
Dylan
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
waterford

Comment Wall (2 comments)

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At 5:23am on January 20, 2012, damien lynch said…

 

Hello Anna,

Thank you for the message.!! Don't feel alone...there are a lot of parents in Ireland in the same situation who can help/offer advice etc. My e mail is mcconnellandlynch@eircom.net also, there are good forums on Facebook for families who have boys/girls with DMD, so don't think yuo are alone.. :-)... Drop me an e mail whenever you feel like it!!!, or check me on Facebook.

Have a lovely weekend,

Damien  

At 9:16pm on December 30, 2011, Joshua's mom said…

Welcome to a place we find hope, where you can find options, and learn more about your son than most doctors can tell you!

Naomi

 
 
 

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