Anna Mossiat's Discussions
When to start steroids if no signs of decline?
Started this discussion. Last reply by Andrea Cleary Oct 5, 2012. 7 Replies 0 Favorites
Hi!I know there have been many discussions about steroids, and I think we are going to start them soon, Jason Darienzo you convinced me :), but a lot of parents seemed to have started them when the…Continue
Heart scar tissue into healthy muscle
Started this discussion. Last reply by Anna Mossiat May 19, 2012. 2 Replies 0 Favorites
Idebenone -different forms available?
Started this discussion. Last reply by lisa burke May 29, 2012. 4 Replies 0 Favorites
Hello everyone!I just wanted to know whether anybody knew if there was different forms of Idebenone available, liquid or other, I'm currently mixing it with fresh orange juice, but there are very…Continue
Idebenone and speech?
Started this discussion. Last reply by Peter Apr 18, 2012. 7 Replies 0 Favorites
Dylan has been on Idebenone for 7 weeks now and I have noticed a great improvement in his speech. It is very fluid now, not that it was bad before but it could come "broken" sometimes, especially…Continue
Anna Mossiat's Page
Profile Information
- About me:
- Optimistic mummy :) , studying for a Masters and enjoying life with her little boy
- Name(s) of child(ren)/individual(s) with Duchenne:
- Dylan
- Age(s) of child(ren)/individual(s) with Duchenne:
- 4-6
- City:
- waterford
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Hello Anna,
Thank you for the message.!! Don't feel alone...there are a lot of parents in Ireland in the same situation who can help/offer advice etc. My e mail is mcconnellandlynch@eircom.net also, there are good forums on Facebook for families who have boys/girls with DMD, so don't think yuo are alone.. :-)... Drop me an e mail whenever you feel like it!!!, or check me on Facebook.
Have a lovely weekend,
Damien
Welcome to a place we find hope, where you can find options, and learn more about your son than most doctors can tell you!
Naomi