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Ann Lucas
  • Female
  • Charlotte, NC
  • United States
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Ann Lucas's Page

Latest Activity


Staff
Ann Lucas posted a blog post

New Research & Clinical Trial Tools on PPMD's DuchenneConnect!

We are excited to announce three new features now available on PPMD's DuchenneConnect! These tools are meant to help you in your journey as you gather information around potential research studies and potential new exon skipping therapies.  Keep Your DuchenneConnect…See More
Jan 12

Staff
Ann Lucas posted a blog post

DuchenneConnect Twitter Chat on Thursday, October 20 at 1PM EST

Join us for our first DuchenneConnect Twitter chat on Thursday, Oct 20, 2016 from 1-2:00 PM EST. We will be using the hashtag #DuchenneConnectTC. Our first chat will cover the importance of PPMD's patient registry,…See More
Oct 17, 2016

Staff
Ann Lucas posted a blog post

The Importance of Early Diagnosis: Improving the Lives of Carries & Their Families

The global Duchenne community will come together on September 7 for World Duchenne Awareness Day. This year a theme was chosen that is not only critical to changing the diagnostic odyssey for people with Duchenne…it is a theme that…See More
Sep 1, 2016

Staff
Ann Lucas shared Lauren Bogue's blog post on Facebook
Jun 16, 2016

Staff
Ann Lucas favorited Lauren Bogue's blog post Genetic Testing for Duchenne & Becker: When Is Re-Testing Needed?
Jun 16, 2016

Staff
Ann Lucas favorited Buddy Cassidy's blog post Buddy's Elegy for Ben Cumbo
May 27, 2016
Shelly left a comment for Ann Lucas
"Hi Ann Thanks a lot for sending me the details. I have made my mind to participate in BMS ANTIMYOSTATIN trial for my son. What do you say about it. Please suggest whether I am on a right track or not... Thanks and regards Shelly"
Mar 1, 2016
Shelly favorited Ann Lucas's profile
Mar 1, 2016
Shelly commented on Ann Lucas's blog post DuchenneConnect – More Than Clinical Trial Updates
"Thanks Ann!!!"
Mar 1, 2016

Staff
Ann Lucas commented on Ann Lucas's blog post DuchenneConnect – More Than Clinical Trial Updates
"Hi Shelly, Here is the information: This Phase 2 trial is focused on the development of PF-06252616, an investigational drug for Duchenne muscular dystrophy. The trial is designed to evaluate the safety, tolerability, efficacy, pharmacokinetics…"
Mar 1, 2016
Shelly commented on Ann Lucas's blog post DuchenneConnect – More Than Clinical Trial Updates
"Thanks Ann for the info. I have already completed registration but haven't received any trial info on my email. I'm highly interested in potential trial for my son . Kindly send me Pfizer ANTIMYOSTATIN trial info. Thanks and regards"
Feb 29, 2016

Staff
Ann Lucas posted a blog post

DuchenneConnect – More Than Clinical Trial Updates

 Did you know that even if you are not interested in being in a clinical trial, DuchenneConnect is still a powerful tool that is useful for people with Duchenne and Becker? That’s right! DuchenneConnect is the largest, most robust patient report registry for Duchenne and Becker in the United States. And we do so much more than just notify you of clinical trials…. We are excited to launch our…See More
Feb 29, 2016

Staff
Ann Lucas favorited Pat Furlong's blog post A Historic Day for Duchenne
Nov 24, 2015

Staff
Ann Lucas is attending PPMD's event
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Webinar: Understanding Myostatin Inhibition at Online Webinar - Eastern Time Zone

November 11, 2015 from 1pm to 2pm
Nov 11th 2015, 1:00 pm ETJoin us Wednesday, November 11th at 1pm ET to learn more about the importance of myostatin inhibition research. This webinar will help to put context and clarity around this treatment pathway so families have a better understanding as they see clinical trials in this area. About Myostatin Inhibition: Scientists have long theorized that the body normally contains compounds that limit muscle growth. For example, certain breeds of cattle develop substantially more muscle…See More
Nov 10, 2015

Staff
Ann Lucas is attending PPMD's event
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Webinar: What to Expect from the FDA Ad Comms at Online Webinar - Eastern Time Zone

November 16, 2015 from 11am to 12pm
Nov 16th 2015, 11:00 am ETJoin us Monday, November 16 at 11am eastern for a one on one conversation between PPMD President Pat Furlong and Dr. Tim Franson, Chief Medical Officer of Your Encore and former VP of Global Regulatory Affairs and Drug Safety at Eli Lilly, to discuss what we can expect out of the upcoming Advisory Committee meetings with the FDA. Not only will Pat and Tim…See More
Nov 10, 2015

Staff
Ann Lucas is attending PPMD's event
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Webinar: Decode Duchenne Genetic Testing Program at Online Webinar - Eastern Time Zone

November 4, 2015 from 1pm to 2pm
Nov 4th 2015, 1:00 pm ETJoin us Wednesday, November 4th at 1pm ET to learn more about the next phase of our Decode Duchenne Genetic Testing Program. This new phase is sponsored by three industry partners collaborating together to bring genetic testing to our Duchenne and Becker community.Learn how the Decode Duchenne program works, who can apply, and why genetic testing is so important for you…See More
Oct 28, 2015

Profile Information

About me:
I am a certified genetic counselor and a DuchenneConnect Coordinator. I have previously worked in a neuromuscular clinic and have over 15 years of clinical experience in medical genetics and research.
About my family:
I am married and have two daughters.
City:
Charlotte
State:
NC

Ann Lucas's Blog

New Research & Clinical Trial Tools on PPMD's DuchenneConnect!

Posted on January 12, 2017 at 1:24pm 0 Comments

We are excited to announce three new features now available on PPMD's DuchenneConnect! These tools are meant to help you in your journey as you gather information around potential research studies and potential new exon…

Continue

DuchenneConnect Twitter Chat on Thursday, October 20 at 1PM EST

Posted on October 17, 2016 at 11:30am 0 Comments

Join us for our first DuchenneConnect Twitter chat on Thursday, Oct 20, 2016 from 1-2:00 PM EST. We will be using the hashtag #DuchenneConnectTC.



Our first chat will cover the…

Continue

The Importance of Early Diagnosis: Improving the Lives of Carries & Their Families

Posted on September 1, 2016 at 1:30pm 0 Comments

The global Duchenne community will come together on September 7 for World Duchenne Awareness Day. This year a theme was chosen that is not…

Continue

DuchenneConnect – More Than Clinical Trial Updates

Posted on February 29, 2016 at 8:30am 3 Comments

 

Did you know that even if you are not interested in being in a clinical trial, DuchenneConnect is still a powerful tool that is useful for people with Duchenne and Becker? That’s right! DuchenneConnect is the largest, most robust patient report registry for Duchenne and Becker in the United…

Continue

Comment Wall (2 comments)

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At 8:03pm on March 1, 2016, Shelly said…
Hi Ann
Thanks a lot for sending me the details. I have made my mind to participate in BMS ANTIMYOSTATIN trial for my son. What do you say about it. Please suggest whether I am on a right track or not...
Thanks and regards
Shelly
At 9:57am on October 9, 2015, Tabitha Roth said…
Hi Ann, I'm so sorry that I sent the comment wrong. I would greatly appreciate you sending it to Margie. It must have been ment for me to speak to you. If you have any information about the Achilles Heel Lengthening procedure, I would love to here it. Thank you for your help!
 
 
 

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