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Ann Dillon
- Female
- Ann Arbor, MI
- United States
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Ann Dillon's Discussions
Where do adult DMD guys live independently??????
Started this discussion. Last reply by Andrea Cleary Dec 16, 2016. 1 Reply 0 Favorites
I live in SE Michigan.and my step-son would like to live on his own. There is pretty much no housing for him except maybe a group home with cognitively impaired old men or a nursing home. Any leads…Continue
Where do adult DMD guys live independently??????
Started this discussion. Last reply by Angela Jan 9. 3 Replies 0 Favorites
I live in SE Michigan.and my step-son would like to live on his own. There is pretty much no housing for him except maybe a group home with cognitively impaired old men or a nursing home. Any leads…Continue
Ann Dillon's Page
Latest Activity
Ann Dillon replied to Ann Dillon's discussion Where do adult DMD guys live independently??????"UPDATE: We found a home with a mother-in-law suite or studio that is separate from our house but only about 30 feet away. It has a small kitchen and an accessible-ish bathroom with a walk-in closet for the shower wheelchair storage and a large…"
Angela replied to Ann Dillon's discussion Where do adult DMD guys live independently??????"I have the same problem here in Massachusetts, nursing homes or group homes that are not appropriate. My son is 30, Vent dependent 24/7 with DMD. He is currently waiting for his own subsidized apartment. I will live with him until we can find nurses…"
Ann Dillon replied to irishgirl's discussion Extra Large Bowel Movements, but not exactly Constipation"We use Colace and probiotics to prevent constipation. He also avoids dairy. Large BMs could cause hemorrhoid type feeling and pressure from sitting could breakdown skin in the anal region. This is pretty painful and uncomfortable. When our son gets…"
Ann Dillon replied to Brett Narmore's discussion Spinal Fusion Surgery Refusal"Hi, My step-son is 20 years old with DMD. He has never been on steroids. He only started BiPAP ventilation last year and does not have a feeding tube. He decided not to have the spinal surgery in his teens. He was very afraid of the pain of surgery,…"
Profile Information
- Name(s) of child(ren)/individual(s) with Duchenne:
- Jonah
- Age(s) of child(ren)/individual(s) with Duchenne:
- 19 or older
- City:
- Ann Arbor
- State:
- MI
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Events
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Mitchell's Run thru Rockford
August 19, 2017 all day – Rockford, MI
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RFOS 2017 In Memory of Joshua Arndt 5K
August 19, 2017 all day – Buffalo, NY
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2017 Disneyland Half Marathon, 10K & 5K
September 1, 2017 to September 3, 2017 – Disneyland
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FACES NY - World Duchenne Awareness Night
September 7, 2017 from 6pm to 9pm – Buffalo Yacht Club
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