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Ann Dillon
  • Female
  • Ann Arbor, MI
  • United States
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Ann Dillon's Discussions

Where do adult DMD guys live independently??????

Started this discussion. Last reply by Andrea Cleary Dec 16, 2016. 1 Reply

I live in SE Michigan.and my step-son would like to live on his own. There is pretty much no housing for him except maybe a group home with cognitively impaired old men or a nursing home. Any leads…Continue

Where do adult DMD guys live independently??????

Started this discussion. Last reply by Angela Jan 9. 3 Replies

I live in SE Michigan.and my step-son would like to live on his own. There is pretty much no housing for him except maybe a group home with cognitively impaired old men or a nursing home. Any leads…Continue

 

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Latest Activity

Angela replied to Ann Dillon's discussion Where do adult DMD guys live independently??????
"That is awesome !! so happy for you all !"
Jan 9
Ann Dillon replied to Ann Dillon's discussion Where do adult DMD guys live independently??????
"UPDATE: We found a home with a mother-in-law suite or studio that is separate from our house but only about 30 feet away. It has a small kitchen and an accessible-ish bathroom with a walk-in closet for the shower wheelchair storage and a large…"
Jan 9
Angela replied to Ann Dillon's discussion Where do adult DMD guys live independently??????
"I have the same problem here in Massachusetts, nursing homes or group homes that are not appropriate. My son is 30, Vent dependent 24/7 with DMD. He is currently waiting for his own subsidized apartment. I will live with him until we can find nurses…"
Jan 8
Andrea Cleary replied to Ann Dillon's discussion Where do adult DMD guys live independently??????
"Would he be able to share housing and personal care attendants with another young guy with DMD? I have no clue, not yet at that stage with our 16 yo, but I'm sure he would also like to live independently when he's finished school. Andrea"
Dec 16, 2016
Ann Dillon posted discussions
Dec 6, 2016
Ann Dillon replied to irishgirl's discussion Extra Large Bowel Movements, but not exactly Constipation
"We use Colace and probiotics to prevent constipation. He also avoids dairy. Large BMs could cause hemorrhoid type feeling and pressure from sitting could breakdown skin in the anal region. This is pretty painful and uncomfortable. When our son gets…"
Nov 28, 2016
Ann Dillon replied to Brett Narmore's discussion Spinal Fusion Surgery Refusal
"Hi, My step-son is 20 years old with DMD. He has never been on steroids. He only started BiPAP ventilation last year and does not have a feeding tube. He decided not to have the spinal surgery in his teens. He was very afraid of the pain of surgery,…"
Jul 19, 2016
Ann Dillon joined PPMD's group
Aug 28, 2015
Ann Dillon is now a member of PPMD Community
Jun 15, 2015

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Jonah
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older
City:
Ann Arbor
State:
MI

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