I'm a grandmother of four beautiful children. Don't tell the boys I said they are beautiful. I recently retired from the Energy sector after working in the IT field for 30+ years. I worship at Memorial Drive Presbyterian Church and teach Sunday School in our special needs program. I'm a 5 year cancer survivor and volunteer weekly in the medical center. I love to travel experiencing the local culture and meeting new friends. I'm a LSU alumni and enjoy supporting the Tigers!
About my family:
I have two sons named Jim & Brett. They live in Houston with their families. Jim & Vicki have a son, Patrick, who is 9 and a daughter, Caroline, who is 5. Brett & Erin have a son, Nicholas, who is 5 and a daughter, Brooke, who is 2. I'm very lucky to have the opportunity to spend a lot of time with all four of my precious grandchildren. Nicholas was diagnosed with DMD right before his 4th birthday. I love it when he comes over to spend the night and we play with his "hot wheels" for hours. I enjoy every moment with this adorable little boy. He makes my heart sing with joy. I praise God for giving us such a special gift.
Name(s) of child(ren)/individual(s) with Duchenne:
My name is Ron Kohudic. I work at Siren Interactive, a digital agency in Chicago that is focused on understanding the needs of patients and physicians dealing with rare diseases. I am part of a small group that is doing research in order to develop new technology to help boys with DMD and their parents, caregivers and health care professionals within the community.
Please let us know if you would be willing to speak with one of my colleagues or I in order to help us better understand DMD from your perspective, as well as to better understand your needs or any specific areas that we could potentially assist you in treating boys with DMD.
Please let me know if we can contact you at your convenience.
Thank you for your time and cooperation in this effort.
Hi Anita! I don't know how I got to your page but I'm so glad I did!! I love the photos of your grandchildren although I'm not sure about the dates.
Haven't connected as yet with local grandmoms but won't give up. Am managing to help take care of children once a week. Thank you again for spending phone time with me--it means so much to me and gives me fuel to carry on! Best, Judie
Thank you for the compliment. Yes, PG&E is a good company to work for and does a great job getting support from our employees to help charities. We are at the tailend of our "Campaign for the Community" and I hope to see support for PPMD. I go out and talk about PPMD to try to get employee's to support them.
I am so impressed and amazed at your dedication as well. You do a great job promoting Coach for a Cure and other things. It is really special with family members, especially grandparents jump in and help. Thank you for all you do!
I am so sorry to hear of your knee. I hope you recover quickly and painless. We are doing well. Nick started his senior year so we are still doing things to get him settled in. He started last Monday. Things will settle soon I hope.
The Coach for a Cure is a big event and I hope brings lots of needed dollars. I hope to help with that as well.
I hope your grandson is doing well. He is very lucky to have you in his life. He is in good hands and has such a great family.
Thank you for your kind words. I understand not being able to write and I appreciate you taking time to do so now. It means so much to me that you would pray for our family. Kenny was a remarkable young man and brought us so much joy. He is missed every single day and still is able to bring us joy when we talk about him. We are such better people having had him in our lives. His goodness just blows us away. Thank you for looking through his pictures it brings me joy to know he's being remembered.
Your Grandson is just beautiful! You enjoy every moment and don't let DMD spoil the beauty of each day. My prayers continue to go out for all these boys, our battle is not over. God Bless you and thanks again for writting me.
Thanks for writing to me. Yes, Grant has wonderful parents. You must have been stationed at the Air Force base, which was devastated by Hurricane Andrew. Keep me posted on advice for our little boys. I want to do as much as I can for our kids and to help raise awareness and funds to keep the research going for a treatment or cure for our precious ones. I will keep Nicholas in my prayers. Harriet
It was our pleasure! I was impressed how the boys were playing! as if they had known for ages!!. Nicholas in fact slept in Mateo's room one night! (Diego is spoiled, he sleeps with me!). Nicholas is lucky on having such a great Grandma!
It was nice to meet you and Erin as well. You are a wonderful and loving Grandma and Mother-in law to be so involved. Educating yourself about this disease will be so helpful for your family in the many years to come. I hope to see Erin in Cincinnati. I just posted a comment on her page to ask her again where she is staying. Ben and I are staying at the Hyatt, July 6-July 10th.
Have a safe and happy 4th of July! Debbie
What a joy meeting you. You are a very special Grandma to Nicholas I can tell. We will manage this disease like diabetes I feel this in my heart. God Bless you & keep supporting Erin, your son & grandbabies.... We's be lost w/o our Grammies:) xoxox