My name is Ron Kohudic. I work at Siren Interactive, a digital agency in Chicago that is focused on understanding the needs of patients and physicians dealing with rare diseases. I am part of a small group that is doing research in order to develop new technology to help boys with DMD and their parents, caregivers and health care professionals within the community.
Please let us know if you would be willing to speak with one of my colleagues or I in order to help us better understand DMD from your perspective, as well as to better understand your needs or any specific areas that we could potentially assist you in treating boys with DMD.
Please let me know if we can contact you at your convenience.
Thank you for your time and cooperation in this effort.
It sounds as if you are very involved with DMD families. Do you know of any in Illinois that have boys ages 8-12. That may want to particpate in my research? I am exploring emotions of a boy with DMD. There is info on my profile. Thanks foryour time! Donna Gluck
Patti here. Finally getitng up and running on PPMD community. Left a message on Adam's site the other day. Love you guys. Gene got a new job and started Monday -- can't wait to see what will be covered as relates to DMD, Kevin and Cincinnati.
I'll be back.
Sorry you couldn't make it to the conf. this year, maybe next year. It would be great to meet face to face. Your kids are adorable. Its amazing that all of our boys are soooooooo cute. How is everything on your end? We are all well here. Hope to hear from you soon.
Hi, Angela. I'm from Brookhaven, south of Jackson. My son Nate (4 almost 5) was recently diagnosed with DMD and I'm trying to find some contacts in MS 'bout services and Drs. hope you have a little time to share. Thanks.
Are the contractors out of your house yet? Hope your Mom's recovery is going well. We just got back from a fun trip in Mexico. Brooke & Nicholas have been spent the last couple of nights with me and always keep me entertained. Let me know what you're up to now that summer is here.
Good to here from you. I am glad that school is out too. I have been enjoying sleeping late (when the boys let me). Austin is still doing very well. He still is walking with no assistance. We are so thankful that he still is. He is 11 now. I hope that they find a cure soon.
We do need to plan to get together some time soon. When is your next visit to Dr. Wong? We are suppose to go in November.