Angela Malone
  • Female
  • Ridgeland
  • United States
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  • Patti Frank
  • Cheryl Markey
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  • Anita Bullers
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Angela Malone's Discussions

Dealing with son's sadness about being different

Started this discussion. Last reply by Donna Gluck Nov 25, 2009. 30 Replies

 

Angela Malone's Page

Profile Information

About me:
Stay at home mom, that never "stays at home."
About my family:
Married to Drew (aka comedian), have 3 children, Lauren (14), Dylan (8), and Adam, DMD (6)
Name(s) of child(ren)/individual(s) with Duchenne:
Adam
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Ridgeland

Comment Wall (17 comments)

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At 3:04pm on July 10, 2012, Ron Kohudic said…

Hi Angela,

My name is Ron Kohudic. I work at Siren Interactive, a digital agency in Chicago that is focused on understanding the needs of patients and physicians dealing with rare diseases. I am part of a small group that is doing research in order to develop new technology to help boys with DMD and their parents, caregivers and health care professionals within the community.

 

Please let us know if you would be willing to speak with one of my colleagues or I in order to help us better understand DMD from your perspective, as well as to better understand your needs or any specific areas that we could potentially assist you in treating boys with DMD.

 

Please let me know if we can contact you at your convenience.

 

Thank you for your time and cooperation in this effort.

 

Sincerely,

Ron

At 12:59pm on December 12, 2009, Donna Gluck said…
Angela,
It sounds as if you are very involved with DMD families. Do you know of any in Illinois that have boys ages 8-12. That may want to particpate in my research? I am exploring emotions of a boy with DMD. There is info on my profile. Thanks foryour time! Donna Gluck
At 12:52pm on February 26, 2009, Patti Frank said…
Hi Angela,
Patti here. Finally getitng up and running on PPMD community. Left a message on Adam's site the other day. Love you guys. Gene got a new job and started Monday -- can't wait to see what will be covered as relates to DMD, Kevin and Cincinnati.
I'll be back.
Love,
Patti
www.caringbridge.org/visit/kevinfrank
At 11:45am on July 23, 2008, Gina Manning said…
Hi Angela,
Sorry you couldn't make it to the conf. this year, maybe next year. It would be great to meet face to face. Your kids are adorable. Its amazing that all of our boys are soooooooo cute. How is everything on your end? We are all well here. Hope to hear from you soon.
Gina
At 4:45pm on July 18, 2008, celeste and carey said…
I noticed your discussions on deflazacort. REALLY need to chat...we are about to go that route. HELP!
Thanks.
At 4:44pm on July 18, 2008, celeste and carey said…
Hi, Angela. I'm from Brookhaven, south of Jackson. My son Nate (4 almost 5) was recently diagnosed with DMD and I'm trying to find some contacts in MS 'bout services and Drs. hope you have a little time to share. Thanks.
Celeste
At 12:02am on June 14, 2008, Anita Bullers said…
Hi Angela,
Are the contractors out of your house yet? Hope your Mom's recovery is going well. We just got back from a fun trip in Mexico. Brooke & Nicholas have been spent the last couple of nights with me and always keep me entertained. Let me know what you're up to now that summer is here.
At 10:27pm on June 8, 2008, Kim Simpson said…
Hi Angela,
Good to here from you. I am glad that school is out too. I have been enjoying sleeping late (when the boys let me). Austin is still doing very well. He still is walking with no assistance. We are so thankful that he still is. He is 11 now. I hope that they find a cure soon.
We do need to plan to get together some time soon. When is your next visit to Dr. Wong? We are suppose to go in November.
At 11:34am on June 6, 2008, Jenny Garofalo said…
HI Angela,
how is everything? kids are home from school for summer? are they driving each other crazy yet?
At 2:09pm on June 5, 2008, Tina said…
Are you going to PPMD this year?
 
 
 

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