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Angela
  • Female
  • Westminster, CO
  • United States
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Angela's Discussions

Protandim Coupon Code - GTBAS4

Started this discussion. Last reply by Mark Barr Jun 5, 2013. 6 Replies

 

Welcome to Jack's Mom's page!

Latest Activity

Angela commented on Hannah Ware's blog post Duchenne and Engineering
"Go Hannah!  We can't wait to see the end result . . ."
Feb 21, 2014
Angela favorited Hannah Ware's blog post Duchenne and Engineering
Feb 21, 2014
Mindy Wilber joined Angela's group
Nov 8, 2013
Mark Barr replied to Angela's discussion Protandim Coupon Code - GTBAS4
"Hello- My name is Mark Barr. I am actually a certified distributor of Protandim. Below are instructions for how to sign up for autoship and recieve Protandim for $40 / per bottle. Let me know if you have any questions. I am a big believer in the…"
Jun 5, 2013
Mark Barr replied to Angela's discussion Protandim Coupon Code - GTBAS4
"Hello- My name is Mark Barr. I am actually a certified distributor of Protandim. Below are instructions for how to sign up for autoship and recieve Protandim for $40 / per bottle. Let me know if you have any questions. I am a big believer in the…"
Jun 5, 2013
Bruce Underwood joined Angela's group
Feb 20, 2012
Angela replied to Veronica E.'s discussion Anyone know of a program to assist with AFO purchases?
"Try this one: http://noboundariesff.org/   We are in the same boat with Jack's night splints, but we are applying for grants with local Colorado foundations.  Good Luck!"
May 23, 2011
Angela posted a discussion

What to do in Denver after the Conference . . .

The Jumping Jack Golf Tournament was started seven years ago in an attempt to save the life of our now 9 year-old son, named Jack. We have chosen Parent Project Muscular Dystrophy to be the beneficiary of the golf tournament again this year.Not a golfer? Join us for dinner and the silent auction!!! You can also participate by donating items for the silent auction and/or volunteering the day of the event. We are hoping DMD families from around the world will donate auction baskets to represent…See More
May 19, 2010

Profile Information

About me:
I am most commonly known as "Robert's Mom" or "Jack's Mom"! I take care of two very active boys, a husband and a home.

In my free time I fundraise, advocate, educate and learn about DMD. I love to help other families in any way that I can. My favorite project is backpacks for newly diagnosed families at Children's Hospital in Denver (the idea of Dr. Susan Apkon). Darrell and I fill backpacks with lots of information about DMD & other resources for parents and toys & books for the kids.
About my family:
We all love to be outside and enjoy beautiful Colorado and all it has to offer.

My husband Darrell loves to play with his boys. He also loves to play softball with the big boys! Let's not forget snowmobiling in the winter!

Robert is our athlete and plays competative soccer, swims, golfs, etc., etc., etc. He is also a excellent student and great big brother

Jack is "The Man" - he is loads of fun, always smiling and loves hangin' out with his friends. He loves Legos, water, being outside, Shamu and monster trucks.

Amber is the newest member of our family. Jack got Amber from Canine Assistants in September 2008. She has given Jack such confidence and Joy!

We have an amazing extended family, made up of family and friends who support us in the most amazing ways. We could not do all we do without them!!
Name(s) of child(ren)/individual(s) with Duchenne:
Jack
Age(s) of child(ren)/individual(s) with Duchenne:
13-18
City:
Westminster, CO

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Comment Wall (97 comments)

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At 9:46am on August 19, 2010, Traci Griffin said…
Hi Angela...just checking out your page and noticed some pictures with an incline and some type of chair that Jack uses in school. Is that something that you made or can you find things like that online? My son Gabe just started kindergarten and I'm trying to figure out what all he needs in the classroom. I think he has a stool for under his feet when he sits at his desk, but that's it. Do you use the incline at home to stretch him?
At 1:15pm on September 21, 2009, Barbara Niederhoff said…
Hi Angela,

No, I haven't seen any info about it (I *have* been sporadically checking up on the mailing list and on here) -- but I think we may not have been able to make it, anyway. Thanks for remembering us, & we may be trying our own event next year.
At 11:08am on August 7, 2009, Sonia Miller said…
Hi Angela, I haven't spoken to you in a while. Hope things are well. I have now gotten my CNA certificate to be home more with Shawn. We are now working on getting Shawn his own dog through CCI. One more step to go to see if we are excepted into the CCI program. We will have to go to Oceanside, CA for 2 weeks if we make it. Kylie has her drivers permit now. Just thinking of you, Sonia
At 11:11am on May 11, 2009, Liisa Underwood said…
Happy Mother's Day too! Thank you for the comments. The boys just LOVED having their photos taken. I think we can work out Friday evening. I'll confer with the assistant scheduler and get back to you. Take care, Liisa
At 10:13am on March 31, 2009, Douglas Sanchez said…
Hi Angela,

I apologize for being slow slow to respond to your well wishes, but I have been totally overwhelmed of late and trying to recover/adjust. Eric and I just returned from Cincinnati and visit with Doctor Wong. I will be trying to keep up with PPMD more now that HUGE initial push is through and onto continuing battle.
At 7:03pm on February 11, 2009, Kim Maddux said…
Hi Angela - I met you a few years ago at conference. I periodically check in with your family and Jack's website. I see that Jack has a service dog. Alex is 9 and still gets around pretty well. I am wondering if I should consider getting him one. I heard it can take a long time. Just curious on what helped your family make the decision to get the dog now and what does Amber help Jack with? Does he attend school with him? If you have this info posted somewhere, let me know and I will read.

Thanks and hope to see you again soon. All the best.

Kim Maddux
At 8:00pm on February 10, 2009, Michael said…
We are heading to UofF shortly; looks like this could be another 3 trips over the next couple of years.
At 2:47pm on February 6, 2009, Missy Shutts said…
I love Jack's CaringBridge site. Please tell him I hope his arm feels better soon! I absolutely cannot wait to see you and your family - including Amber! I can tell she and Jack are the best of friends! I am helping coordinate all the RFOS marathon efforts. So, I am happy to help you guys in anyway. Just let me know! Have a great weekend!
At 8:59am on February 6, 2009, Brian Wolf said…
She moved to Denver on Byers Ave - her finance got a job out there and they moved there a few months back. See ya!

Brian
At 10:14pm on February 5, 2009, Brian Wolf said…
hi Angela! Karen's cousin moved out there about 17 miles from you! We want to come and visit some day (with skis of course). How is Jack doing? Since we changed my Jack's prednisone to 10 days off 10 days on he's been losing strength it seems. Seems like next year might be a big year for developements in treatments!!! See ya, Brian

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