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Angela
- Female
- Westminster, CO
- United States
- Featured Blog
- Discussions (88)
- Events
- Groups (7)
- Photos (90)
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Angela's Groups
Angela's Discussions
What to do in Denver after the Conference . . .
Started this discussion. Last reply by Angela May 23, 2010. 4 Replies 0 Favorites
Protandim Coupon Code - GTBAS4
Started this discussion. Last reply by christine good Feb 7, 2010. 4 Replies 0 Favorites
Your input needed, to help us create a great library!
Started this discussion. Last reply by Nana Apr 13, 2010. 7 Replies 0 Favorites
Welcome to Jack's Mom's page!
Latest Activity
Angela replied to Veronica E.'s discussion Anyone know of a program to assist with AFO purchases?"Try this one: http://noboundariesff.org/
We are in the same boat with Jack's night splints, but we are applying for grants with local Colorado foundations. Good Luck!"
Angela posted a discussionWhat to do in Denver after the Conference . . .
The Jumping Jack Golf Tournament was started seven years ago in an attempt to save the life of our now 9 year-old son, named Jack. We have chosen Parent Project Muscular Dystrophy to be the beneficiary of the golf tournament again this year.Not a golfer? Join us for dinner and the silent auction!!! You can also participate by donating items for the silent auction and/or volunteering the day of the event. We are hoping DMD families from around the world will donate auction baskets to represent…See More
Angela updated an event
7th Annual Jumping Jack for Duchenne MD Charity Golf Tournament at The Ranch Country Club
June 28, 2010 all day
The Jumping Jack Golf Tournament was started seven years ago in an attempt to save the life of our now 9 year-old son, named Jack. It came after hearing the news that the genetic disorder he had, Duchenne muscular dystrophy would disable our lively, wonderful child by age ten, and take his life in his early twenties. The heartbreak and determination became apparent to all those around us as we quickly committed to increase the awareness of DMD and support the research that will one day realize…See More
Angela added a discussion to the group Colorado Families
March FACES meeting - Meet your clinic staff
Please join us Tuesday, March 30th at Children's Hospital, from 4:30 - 7:00Please join us for a special evening with our clinic staff. This is our opportunity to meet the clinic staff without our kids and learn about all services that are offered. Learn about services that are offered, that you might not know about. Meet existing and new clinic staff. Learn about new services that are coming. Also, meet and socialize with other families. Along with the staff we see at each visit, we will…See More
7th Annual Jumping Jack for Duchenne MD Charity Golf Tournament at The Ranch Country Club
June 28, 2010 all day
The Jumping Jack Golf Tournament was started seven years ago in an attempt to save the life of our now 9 year-old son, named Jack. It came after hearing the news that the genetic disorder he had, Duchenne muscular dystrophy would disable our lively, wonderful child by age ten, and take his life in his early twenties. The heartbreak and determination became apparent to all those around us as we quickly committed to increase the awareness of DMD and support the research that will one day realize…See More
Anthony Stoops is attending Angela's event7th Annual Jumping Jack for Duchenne MD Charity Golf Tournament at The Ranch Country Club
June 28, 2010 all day
The Jumping Jack Golf Tournament was started seven years ago in an attempt to save the life of our now 9 year-old son, named Jack. It came after hearing the news that the genetic disorder he had, Duchenne muscular dystrophy would disable our lively, wonderful child by age ten, and take his life in his early twenties. The heartbreak and determination became apparent to all those around us as we quickly committed to increase the awareness of DMD and support the research that will one day realize…See More
Angela's discussion was featuredCO/WY FACES meeting recap from 1/31/2010
Dear FACES of Colorado/Wyoming Community,We began our Kickoff Meeting on January 31, 2010 with some social time. Children played in the basement with our volunteers, Robert and Beth– Thank you! Pat Furlong talked a little bit about the upcoming PPMD Annual Conference, to be held at the Denver Marriott City Center from June 24-27. Because this conference has become one of the premiere DMD conferences in the world, the format is changing a bit. Now, the Annual Conference will be organized along…See More
Profile Information
- About me:
- I am most commonly known as "Robert's Mom" or "Jack's Mom"! I take care of two very active boys, a husband and a home.
In my free time I fundraise, advocate, educate and learn about DMD. I love to help other families in any way that I can. My favorite project is backpacks for newly diagnosed families at Children's Hospital in Denver (the idea of Dr. Susan Apkon). Darrell and I fill backpacks with lots of information about DMD & other resources for parents and toys & books for the kids.
- About my family:
- We all love to be outside and enjoy beautiful Colorado and all it has to offer.
My husband Darrell sells John Deere construction equipment and loves to play with his boys. He also loves to play softball with the big boys! Let's not forget snowmobiling in the winter!
Robert is our athlete and plays competative soccer, swims, golfs, etc., etc., etc. He is also a excellent student and great big brother
Jack is "The Man" - he is loads of fun, always smiling and loves hangin' out with his friends. He loves Legos, water, being outside, Shamu and monster trucks.
Amber is the newest member of our family. Jack got Amber from Canine Assistants in September 2008. She has given Jack such confidence and Joy!
We have an amazing extended family, made up of family and friends who support us in the most amazing ways. We could not do all we do without them!!
- Name(s) of child(ren)/individual(s) with Duchenne:
- Jack
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12
- City and State:
- Westminster, CO
Angela's Photos
Comment Wall (98 comments)
- At 9:46am on August 19, 2010,
Traci Griffin said… - Hi Angela...just checking out your page and noticed some pictures with an incline and some type of chair that Jack uses in school. Is that something that you made or can you find things like that online? My son Gabe just started kindergarten and I'm trying to figure out what all he needs in the classroom. I think he has a stool for under his feet when he sits at his desk, but that's it. Do you use the incline at home to stretch him?
- At 1:15pm on September 21, 2009,
Barbara said… - Hi Angela,
No, I haven't seen any info about it (I *have* been sporadically checking up on the mailing list and on here) -- but I think we may not have been able to make it, anyway. Thanks for remembering us, & we may be trying our own event next year.
- At 11:08am on August 7, 2009,
Sonia Miller said… - Hi Angela, I haven't spoken to you in a while. Hope things are well. I have now gotten my CNA certificate to be home more with Shawn. We are now working on getting Shawn his own dog through CCI. One more step to go to see if we are excepted into the CCI program. We will have to go to Oceanside, CA for 2 weeks if we make it. Kylie has her drivers permit now. Just thinking of you, Sonia
- At 11:11am on May 11, 2009,
Liisa Underwood said… - Happy Mother's Day too! Thank you for the comments. The boys just LOVED having their photos taken. I think we can work out Friday evening. I'll confer with the assistant scheduler and get back to you. Take care, Liisa
- At 10:13am on March 31, 2009,
Douglas Sanchez said… - Hi Angela,
I apologize for being slow slow to respond to your well wishes, but I have been totally overwhelmed of late and trying to recover/adjust. Eric and I just returned from Cincinnati and visit with Doctor Wong. I will be trying to keep up with PPMD more now that HUGE initial push is through and onto continuing battle.
- At 7:03pm on February 11, 2009,
Kim Maddux said… - Hi Angela - I met you a few years ago at conference. I periodically check in with your family and Jack's website. I see that Jack has a service dog. Alex is 9 and still gets around pretty well. I am wondering if I should consider getting him one. I heard it can take a long time. Just curious on what helped your family make the decision to get the dog now and what does Amber help Jack with? Does he attend school with him? If you have this info posted somewhere, let me know and I will read.
Thanks and hope to see you again soon. All the best.
Kim Maddux
- At 8:00pm on February 10, 2009,
Michael said… - We are heading to UofF shortly; looks like this could be another 3 trips over the next couple of years.
- At 2:47pm on February 6, 2009,
Missy Shutts said… - I love Jack's CaringBridge site. Please tell him I hope his arm feels better soon! I absolutely cannot wait to see you and your family - including Amber! I can tell she and Jack are the best of friends! I am helping coordinate all the RFOS marathon efforts. So, I am happy to help you guys in anyway. Just let me know! Have a great weekend!
- At 8:59am on February 6, 2009,
Brian Wolf said… - She moved to Denver on Byers Ave - her finance got a job out there and they moved there a few months back. See ya!
Brian
- At 10:14pm on February 5, 2009, Brian Wolf said…
- hi Angela! Karen's cousin moved out there about 17 miles from you! We want to come and visit some day (with skis of course). How is Jack doing? Since we changed my Jack's prednisone to 10 days off 10 days on he's been losing strength it seems. Seems like next year might be a big year for developements in treatments!!! See ya, Brian
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Events
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Gala Blue Ball
May 26, 2012 at 6:30pm to May 27, 2012 at 1am – Esplanade Hotel, Fremantle
0 Comments 0 Favorites
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