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Andrew Kerr Male West Kelowna, BC Canada: Favorite

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Run for Our Sons

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Adolescence (age 7-12)

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Andrew Kerr's Discussions

Pfizer Extends Age Eligibility for Myostatin Inhibitor Trial

Started Oct 9, 2016 0 Replies 0 Favorites

I haven't seen this on PPMD yet so I thought I'd share.Pfizer has extended the age range for their Myostatin Inhibitor trial. Originally it was, if I remember correctly, 6<10 years of age. They…Continue

Interesting Research - May explain why so far, exon-skipping isn't seeing the results we'd hoped for.

Started this discussion. Last reply by Jay Griffin Feb 15, 2016. 2 Replies 1 Favorite

Researchers found another function that dystrophin provides in muscle cells. The mini-dystrophin doesn't seem to provide that function.…Continue

Gene Editing?

Started Dec 4, 2015 0 Replies 0 Favorites

Saw this link on CBC (Canadian news site):http://www.cbc.ca/news/health/crispr-summit-1.3349192The tool was adapted from one…Continue

Ready for Kindergarden?

Started this discussion. Last reply by Andrew Kerr Jun 22, 2010. 4 Replies 0 Favorites

Our son Hayden is just finishing up his first year of school. The teachers and aids, whom we really like, have suggested we may want to consider keeping him in pre-K for one more year because of…Continue

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Andrew Kerr's Page

Profile Information

About me:: Father of two boys with DMD and uncle to two more.

I am an IT Security Consultant, recently moved to British Columbia with the hope of getting better access to trials for the boys.

About my family:: Happily married to my wife Mandy, and raising our two boys Hayden (9 years old) and Cameron (6 years old).

Name(s) of child(ren)/individual(s) with Duchenne:: Hayden and Cameron

Age(s) of child(ren)/individual(s) with Duchenne:: 7-12, 13-18

City:: West Kelowna

State:: British Columbia

Andrew Kerr's Blog

Myostatin Inhibitor Trials

Posted on October 9, 2015 at 5:54pm 6 Comments 1 Favorite

Looks like we are just going to get into the Pfizer Myostatin Inhibitor trials with Hayden. He turns 10 in just over a month and we're going for screening next week to Vancouver. We were really starting to wonder if he was going to get in, but the folks at Vancouver pushed and unfortunately had to bump another boy that was scheduled to be the first at that location. The other boy will still get in on the trial, but Hayden would have been excluded the day he turned 10 so they had to move…

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We've been asked to join a trial.

Posted on August 15, 2015 at 2:09pm 2 Comments 1 Favorite

So this week, one of our biggest hopes came true. About a year ago, I left my job to take a consulting position and we moved to British Columbia. We weren't particularly happy with the services we were receiving in Saskatchewan and decided if we could, we'd move to be closer to one of the Children's hospitals in Canada. We didn't want to move East to be near Toronto, so BC was the only other choice. There certainly were some stressful times during the move and since, and it wasn't easy…

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Reddit Users, Vote for PPMD

Posted on February 18, 2015 at 4:26pm 0 Comments 0 Favorites

So I'm sure there are at least a few folks from PPMD that also visit Reddit.

Reddit is donating about $850,000 evenly split among 10 charities. PPMD is on the list but isn't getting much attention. If you are a user, you can go here:

http://www.reddit.com/donate?organization=311405490

And click the 'Vote For This Charity' button. It wouldn't hurt to vote up the submission which…

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Happy Father's Day

Posted on June 19, 2011 at 2:38pm 0 Comments 2 Favorites

Hayden (our oldest) is in Kindergarten and I wasn't too surprised when we gave me a card this morning they made in class. What did surprise me was the poem included in it, and how I couldn't hold back a few tears after reading it. It hit a little too close to home and made me thing about how important it is to slow down once in a while and enjoy the time we have.

"Walk a little slower Daddy,"

said a child so small,

"I'm following in your footsteps…

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Comment Wall (3 comments)

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At 2:18pm on March 1, 2011, Allyson said…: Andrew, I saw your reponse to Sharon's blog today and your story about choosing trees for your yard and the person's comment that they would be great to climb on just hit home for me. I've got an almost 7-year-old son diagnosed a little over 2 years ago. We went shopping for a new car this past weekend and it hit me that in the past we would have just bought what we liked. But now that whole process is tainted by the "can he get in it easily?" question. Anyways, I just found it a little saddening at the time, and your tree story brought it all back how life has been changed, even in little incremental ways. But we are going with the same approach as you are, to concentrate on the things we can control, not to place an undue amount of worry/focus on the things we cannot, and have as much fun as we can in the meantime.

At 9:24pm on August 3, 2010, Joshua's mom said…: It was still baseball size 2 hours later!!! It bounced 5 feet in the air and totalled a lot of cars. You were probably quite grateful not to be home. Did you get any damage from it?

At 1:49am on July 13, 2010, Joshua's mom said…: Hi Andrew,

On August long we will be going to Kenosee and Carlyle for the weekend. We are actually having KFC from Weyburn delivering Saturday night's supper since the one in White Bear burnt down last week! I know it is approx. an hour away but if you would like to meet that would be great! Our phone number is 204-375-6678.

Take care,
Naomi