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Andrew Kerr
- Male
- West Kelowna, BC
- Canada
- Featured Blog (10)
- Discussions (118)
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Andrew Kerr's Groups
Andrew Kerr's Discussions
Pfizer Extends Age Eligibility for Myostatin Inhibitor Trial
Started Oct 9, 2016 0 Replies 0 Favorites
I haven't seen this on PPMD yet so I thought I'd share.Pfizer has extended the age range for their Myostatin Inhibitor trial. Originally it was, if I remember correctly, 6<10 years of age. They…Continue
Interesting Research - May explain why so far, exon-skipping isn't seeing the results we'd hoped for.
Started this discussion. Last reply by Jay Griffin Feb 15, 2016. 2 Replies 1 Favorite
Researchers found another function that dystrophin provides in muscle cells. The mini-dystrophin doesn't seem to provide that function.…Continue
Gene Editing?
Started Dec 4, 2015 0 Replies 0 Favorites
Saw this link on CBC (Canadian news site):http://www.cbc.ca/news/health/crispr-summit-1.3349192The tool was adapted from one…Continue
Ready for Kindergarden?
Started this discussion. Last reply by Andrew Kerr Jun 22, 2010. 4 Replies 0 Favorites
Our son Hayden is just finishing up his first year of school. The teachers and aids, whom we really like, have suggested we may want to consider keeping him in pre-K for one more year because of…Continue
Andrew Kerr's Page
Profile Information
- About me:
- Father of two boys with DMD and uncle to two more.
I am an IT Security Consultant, recently moved to British Columbia with the hope of getting better access to trials for the boys.
- About my family:
- Happily married to my wife Mandy, and raising our two boys Hayden (9 years old) and Cameron (6 years old).
- Name(s) of child(ren)/individual(s) with Duchenne:
- Hayden and Cameron
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12, 13-18
- City:
- West Kelowna
- State:
- British Columbia
Andrew Kerr's Blog
Myostatin Inhibitor Trials
Posted on October 9, 2015 at 5:54pm 6 Comments 1 Favorite
Looks like we are just going to get into the Pfizer Myostatin Inhibitor trials with Hayden. He turns 10 in just over a month and we're going for screening next week to Vancouver. We were really starting to wonder if he was going to get in, but the folks at Vancouver pushed and unfortunately had to bump another boy that was scheduled to be the first at that location. The other boy will still get in on the trial, but Hayden would have been excluded the day he turned 10 so they had to move…
ContinueWe've been asked to join a trial.
Posted on August 15, 2015 at 2:09pm 2 Comments 1 Favorite
So this week, one of our biggest hopes came true. About a year ago, I left my job to take a consulting position and we moved to British Columbia. We weren't particularly happy with the services we were receiving in Saskatchewan and decided if we could, we'd move to be closer to one of the Children's hospitals in Canada. We didn't want to move East to be near Toronto, so BC was the only other choice. There certainly were some stressful times during the move and since, and it wasn't easy…
ContinueReddit Users, Vote for PPMD
Posted on February 18, 2015 at 4:26pm 0 Comments 0 Favorites
So I'm sure there are at least a few folks from PPMD that also visit Reddit.
Reddit is donating about $850,000 evenly split among 10 charities. PPMD is on the list but isn't getting much attention. If you are a user, you can go here:
http://www.reddit.com/donate?organization=311405490
And click the 'Vote For This Charity' button. It wouldn't hurt to vote up the submission which…
ContinueHappy Father's Day
Posted on June 19, 2011 at 2:38pm 0 Comments 2 Favorites
Hayden (our oldest) is in Kindergarten and I wasn't too surprised when we gave me a card this morning they made in class. What did surprise me was the poem included in it, and how I couldn't hold back a few tears after reading it. It hit a little too close to home and made me thing about how important it is to slow down once in a while and enjoy the time we have.
Continue"Walk a little slower Daddy,"
said a child so small,
"I'm following in your footsteps…
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On August long we will be going to Kenosee and Carlyle for the weekend. We are actually having KFC from Weyburn delivering Saturday night's supper since the one in White Bear burnt down last week! I know it is approx. an hour away but if you would like to meet that would be great! Our phone number is 204-375-6678.
Take care,
Naomi