I am a mother who have a son with Duchenne muscular distrophy.
I want to talk with other parents, get advice on tretmants, drugs.
How to deal with this disease, yet we find very difficult to us.
I need experience, advise parents to go to, to survive something like this.
About my family:
We are a family of four.
Our elder son of 7 years has muscular dystrophy.
The younger son is now much better than Pavle in his age and we hope that with him all right, he is 2.8 years.
We live in Split, it is a city in Croatia, Europe.
Very difficult to come to information about this disease because we are poorly educated doctor.
Otherwise we are like any other family, just as we are changing lives for the moment we do not know in which direction, will fight for our son, we will do everything in our power to help him.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
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