Nice to hear from you. I didn't realize I had a Page until I got your email. I see someone else wrote me as well nearly a month ago and I didn't realize it. Can you tell me a little more about how this works.
I'm still using Josef's Facebook page under my email name.
I spoke with Jacob in Philly this July--what an amazing man!!! Kudos to you for your raising of him! His candor and sense of humor can only be credited to you, and I thank you for giving us the opportunity to meet him.
Our son Nick, age 9, will be interviewed this month for the local DMD telethon feed. I asked Jacob at the reception for words of wisdom on how or whether to convey PPMD's involvement in Nick's treatment and my fundraising efforts...Jacob's face and response--priceless.