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Ana's Page

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Donna Cicardo left a comment for Ana
"So Cute!!!  "
Apr 4
Ana added a discussion to the group Texas Families
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Loophole into Medicaid

I have found a loophole into Medicaid recently.  I dont know if everyone else already know's about this or not... but,, as an FYI to anyone who needs it.There are multiple "lists" everyone needs to sign up for... Some of these have 3-10 yr waiting lists!!"Medically Dependent Childrens Program" (MDCP) This is for children (like our boys) who consistently have to have help with bathing, restroom, dressing, getting meals, etc....  The waiting list on this program is about 3yrs.  Thats when you…See More
Feb 23, 2010
4 Comments
Ana posted a discussion

Unable to walk overnite?

Has anyone had issues with their boys' all of a sudden not able to walk or stand at all overnite? Then the next morning get up and walk around the next morning like that day never happened?This last Friday and Saturday, Austin, now age 11, literally could not stand on his own. The day before, he was walking (not great, but as usual for lately), then all of a sudden he cant make it from the sink to the toilet, and cant stand up long enough for me to get his pants down to use the restroom!! I was…See More
Sep 8, 2009
9 Comments
Ana joined Julie Gilmore's group
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Tactile Sensitivities

A group for all the families that have children with tactile sensitivities, to share experiences and tips on how to deal with the additional issues this raises
Feb 26, 2009
46 Comments

Profile Information

About me:
I am the mother of 4 wonderful children, one of which is my son with Duchenne. I am engaged to a great man and I am a welder and work full time.
About my family:
My Fiance and I have Austin, who is 9 and has Duchenne. We have two 13 yr old girls, Alexis and Calllie and another 9yr old boy, Dillon. Austin is the only child in our family with DMD, we're not sure yet if my daughter and I are carriers or not.
Name(s) of child(ren)/individual(s) with Duchenne:
Austin
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City and State:
Roanoke, Tx
Country:
United States

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At 10:39pm on April 4, 2012, Donna Cicardo said…

So Cute!!!

 

At 11:24pm on September 14, 2009, Holly Kimball said…
Hi Ana, sorry it took me awhile to get back with you. Yes my son used to do the same thing, about 3-6 months before he went into a wheelchair full time. It would scare the crap out of me and I would worry about him, then the next day he was fine. As time went on he would have more and more times when it seamed his legs just kinda "gave out" on him. That's when we decided to have him use his wheechair more so he wouldn't fall and hurt himself. Good luck with this, I know it's hard.
Take care.
At 3:04pm on July 20, 2009, Holly Kimball said…
We saw a therapist today, he is deciding what meds will be best for Tyler. Yeah my son talks non stop and is very OCD I think. I aften wonder if that is part of the DMD, or just something else he's been blessed to have LOL. It's nice know their are other children out there like mine and other parents going through the same adventure every day! :)

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