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Ana
  • Female
  • Roanoke, Tx
  • United States
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Ana's Discussions

Unable to walk overnite?

Started this discussion. Last reply by Bill Watts Dec 9, 2009. 9 Replies

 

Ana's Page

Latest Activity

Ana commented on PPMD's group Duplications
"Still Here"
May 10, 2016
Ana replied to Char Burke's discussion Calling all duplications - and checking in on status of where our guys are at in the group Duplications
"1) Austin has Duplication 53-60 2) Non-mobile, wheelchair all the time.  Can still eat and drink on his own but does need help dressing and washing hair.  3) Austin takes Lisinopril, Carvedilol, and Spirinolactone for heart meds (heart…"
Oct 19, 2014
Ana replied to Char Burke's discussion How are your son doing with duplication(S)? in the group Duplications
"Austin is 14 and has duplication of exons 53-60.  He quit walking when he was 11 and can't stand at all.  He started heart meds in August this year due to scarring and decreased heart function.  He has two physical therapists and…"
Dec 16, 2012
Donna Cicardo left a comment for Ana
"So Cute!!!  "
Apr 4, 2012

Profile Information

About me:
I am the mother of 4 wonderful children, one of which is my son with Duchenne. I am engaged to a great man and I am a welder and work full time.
About my family:
My Fiance and I have Austin, who is 9 and has Duchenne. We have two 13 yr old girls, Alexis and Calllie and another 9yr old boy, Dillon. Austin is the only child in our family with DMD, we're not sure yet if my daughter and I are carriers or not.
Name(s) of child(ren)/individual(s) with Duchenne:
Austin
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Roanoke, Tx

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Comment Wall (21 comments)

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At 10:39pm on April 4, 2012, Donna Cicardo said…

So Cute!!!

 

At 11:24pm on September 14, 2009, Holly Cahoon said…
Hi Ana, sorry it took me awhile to get back with you. Yes my son used to do the same thing, about 3-6 months before he went into a wheelchair full time. It would scare the crap out of me and I would worry about him, then the next day he was fine. As time went on he would have more and more times when it seamed his legs just kinda "gave out" on him. That's when we decided to have him use his wheechair more so he wouldn't fall and hurt himself. Good luck with this, I know it's hard.
Take care.
At 3:04pm on July 20, 2009, Holly Cahoon said…
We saw a therapist today, he is deciding what meds will be best for Tyler. Yeah my son talks non stop and is very OCD I think. I aften wonder if that is part of the DMD, or just something else he's been blessed to have LOL. It's nice know their are other children out there like mine and other parents going through the same adventure every day! :)
 
 
 

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