Amy Sienkiewicz
  • Female
  • Plymouth, PA
  • United States
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Amy Sienkiewicz's Friends

  • Laura LaPat
  • Rita Felling
  • Cher Sienkiewicz
  • Wyatt's Mommy, Melissa
  • Perlita & Gordy Hains
  • jenn
  • Barb Rush
  • Rhonda
  • Gail D. McVicker
  • Rachel Poysky
  • Tanya Fleming
  • Kari
  • Niccole Papp
  • Laurie Paschal
  • Jacobs Mommom

Amy Sienkiewicz's Discussions

 

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Latest Activity

Amy Sienkiewicz joined PPMD's group
Oct 15, 2014
Amy Sienkiewicz posted a discussion

Too soon to buy a van?

Our son is going to be 7 in December and he uses a power scooter mainly for distances. We are also expecting our 4th child in December. So we are outgrowing our mini van especially with double stroller and scooter and then fitting anything else. We are looking at the new 2015 Ford Transit and then getting it converted. Do you think it is too soon to be getting a van? If we need something bigger it seems silly to get something for now to then need to buy the handicapped van. It would also be…See More
Oct 15, 2014
Amy Sienkiewicz commented on Lisa Jones's group Cincinnati Children's Hospital Medical Center
"Looking into seeing Dr. Wong. How does it work with insurance? We are from PA. I am assuming insurance probably won't cover it. Is is considered an MDA clinic?"
Jan 30, 2014
Amy Sienkiewicz joined Lisa Jones's group
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Cincinnati Children's Hospital Medical Center

For families who take their children to Cincinnati Children's Hospital for DMD/BMD  medical care.See More
Jan 30, 2014
Dalibor Randjelovic favorited Amy Sienkiewicz's profile
Jun 1, 2012
Wyatt's Mommy, Melissa left a comment for Amy Sienkiewicz
"Love, love, love the pictures!  "
Oct 25, 2011
Amy Sienkiewicz posted photos
Sep 24, 2011
Amy Sienkiewicz commented on Rachel Poysky's group Coach to Cure MD
"Hi Rachel I would like to host a tailgate event at the King's College Game in Wilkes Barre, PA if someone has not already said that they would. Please let me know how I can get more info on this."
Jun 19, 2011
Amy Sienkiewicz commented on Dee's group Mom's Cafe
"Hang in there Joanne. Sending prayers your way!"
Jun 19, 2011
Amy Sienkiewicz joined Dee's group
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Mom's Cafe

A group for Mom's who like to vent and talk about life with DMD kids
Oct 27, 2010
Amy Sienkiewicz joined PPMD's group
Jun 25, 2009

Staff
Amy Sienkiewicz was featured
Apr 22, 2009
Amy Sienkiewicz joined Paul Johnson's group
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Families in Pennsylvania

Group where families in the Pennsylvania or sorrounding area can colloborate
Apr 2, 2009
Amy Sienkiewicz joined PPMD's group
Mar 25, 2009
Amy Sienkiewicz joined Kari's group
Mar 22, 2009
Amy Sienkiewicz is now a member of PPMD Community
Mar 22, 2009

Profile Information

About me:
I am a stay at home mom, pastor's wife, and Independent Thirty-One Consultant. I love the Lord and He is my strength!
Hebrews 12:1-3
About my family:
Our older son Noah was diagnosed with MD in Sept. 2008 and then later found out that it was Duchenne. Noah's dad is the pastor of the Cherry St. Bible Church in Plymouth, PA. We are very involved with the work in the church. We had our second son Josiah Nov. 9, 2010 and he does not have DMD. We had our daughter Bethany Oct. 11, 2012.
Name(s) of child(ren)/individual(s) with Duchenne:
Noah
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Plymouth
State:
PA

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Comment Wall (13 comments)

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At 2:53pm on October 25, 2011, Wyatt's Mommy, Melissa said…

Love, love, love the pictures!

 

At 12:34am on April 10, 2011, Wyatt's Mommy, Melissa said…
That is a beautiful thing.  I tell me kids all the time that Wyatt will always need them. If they can't count on each other, who can they count on.  Have an amazing week.  Take care. 
At 8:07pm on April 9, 2011, Wyatt's Mommy, Melissa said…
I am so happy to hear that your baby is healthy, what an amazing blessing.  Enjoy your beautiful boys. 
At 7:28pm on February 2, 2010, jenn said…
thanks!
At 12:20am on September 23, 2009, Kari said…
Dr. Brenda Wong's team at Cincinnati Children's is the best clinic around that I know about. This will be our second trip in November.
At 12:18am on September 23, 2009, Kari said…
Sure thing Amy. Welcome to PPMD.
At 6:17pm on September 22, 2009, Wyatt's Mommy, Melissa said…
His vitamin D is because his is very low. I do know from reading on this site that other kids take Vitamin D too. When you start to go to an MD doctor, they should (Dr. Wong's team will) check his vitamin d level. Then they will advise you on how much he needs. Amy, it totally sounds like you are on the right track. Good Luck, let me know how Noah is doing.
Melisa
At 12:32am on September 21, 2009, Wyatt's Mommy, Melissa said…
Hi Amy,
Wyatt will be 19 months in just a few days, so you're right they are very close in age. Wyatt still doesn't walk independently so we do a few things. We live in Washington State. We take him to a physical therapist about 30 minutes for home once a week. We also do the stretches I found on this site. Wyatt's muscle tone is still excellent so the stretches aren't really necessary right now, we do them just so he gets in the habit. He takes a very large amount of vitamin D, 2000 IU, (it's called drop of sunshine liquid and I get it at super supplements) which was the amount his doctor told us to give. His nutritionist also advised us to give him a liquid multi-vitamin (which I get it a drug store it's made by enfamil, I think, I get it in the baby section, next to formula.). In addition, Wyatt is very little for his age, so in order to give him more calories, I mix French Vanilla Carnation instant breakfast (2 table spoons) w/ 5 oz of whole milk. It not only has protein, but calories too. I think it's working, he's finally gaining weight. He weighs just over 21 pounds. Everything I've seen on this site and from talking to moms, around age 2 I will start on some other supplements. I'm still looking into those, I would be happy to share any information that I find.

Wyatt was diagnosed at Seattle Children's, we took him to 1 appt. in the rehab clinic and they told us there wasn't much that could be done. That was completely the opposite of what I'd read on this site. Very early on, totally by chance, Pat Furlong had come across Wyatt's story, we met her in April 2009 (she was in Seattle at a convention). We discussed Wyatt for quite awhile about his care, it was such a turning point. She asked us if we were ready to roll up our sleeves and get dirty.

I had met some Moms in the Washington group and they told me they take their kids to Cincinnati Children's. So I looked into it, and that's where we went. (Pat actually emailed them for us and they called me) We went in May and they were incredible. Usually, a family only goes once a year, but because Wyatt's weight problem was never solved we are going back in December for more tests. Once all the testing is done, then we will just go for check ups once a year, until something changes with him and then we will go more often. I hope I didn't give you too information, let me know if I can do anything else. So many people on this site have been kind and so helpful to me, if I can do that, then I'm honored. Take care.

:) Melissa .
At 10:18pm on September 20, 2009, Wyatt's Mommy, Melissa said…
Hi Amy, it's nice to meet you. I hope that we can get to know each other though this site. Take care and have an amazing week.
:) Melissa
At 10:06pm on May 18, 2009, Perlita & Gordy Hains said…
Hi amy - Levi will be 3 in August. There are some local events/mtgs but I'm just staring this journey so I haven't attended any yet. There is a HUGE PPMD annual mtg in Atlanta at the end of June. All the researchers/doctors are there, they tell me it's a MUST ATTEND. My husband & I are going this year so we hope to meet others like us & leave w/ lots of HOPE
 
 
 

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