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Amrit
  • Female
  • Cleveland, OH
  • United States
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Amrit's Friends

  • Fred Luchetti
  • Lianette Gonzalez
  • Kathleen Devine
  • Peter
  • Ambrish Kapadia
  • Anup Kalra
  • Amy Aikins
  • amit gupta
  • Moein
  • Lisa Mancin
  • Jason G
  • Donna Cicardo
  • baljit kaur
  • Archana
  • Tulika

Amrit's Discussions

Carrier Testing

Started this discussion. Last reply by Amrit Nov 4, 2012. 14 Replies

Sumit Utrophin

Started this discussion. Last reply by Amrit May 25, 2012. 11 Replies

Halo

Started this discussion. Last reply by David May 29, 2012. 17 Replies

 

Amrit's Page

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Jasdeep Singh
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Cleveland

Comment Wall (2 comments)

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At 2:53pm on April 6, 2011, Moein said…

Hi,my son is about 6 years.He is on the waiting list for this trial.we are from London ON where the ACE 031 is being conducted.I called my son's neurologist who is also running the trial here,and he told me that my son is supposed to enter the trial on June.I had the impression that they will go on with this trial.Moreover,It seems that this drug is working.Anyway,I am going now to get more news and if you like I can provide you with the updates.

My son uses:DFZ,ECGC,LOSARTAN (ON MY OWN),Vit D,fish oil,multivit,Coq10,Taurine(aminoacid),Calcium.

I highly recommend Losartan,and I bet that it might stop fibrosis+reduce the side effects of DFZ.

I do everything I can do then rely on God because doctors and medicine are just causes in any treatment,but God is the CAUSATIVE to this treatment because he is the omnipotent and merciful.

Keep the hope.Ii becomes closer

At 2:17pm on April 6, 2011, Moein said…

Hi,

Don't worry,I have strong feeling and faith that our sons will be rescued.Could you tell me what medications and supplements you use for your son?

 
 
 

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