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Amrit
- Female
- Cleveland, OH
- United States
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Amrit's Discussions
Carrier Testing
Started this discussion. Last reply by Amrit Nov 4, 2012. 14 Replies 0 Favorites
Sumit Utrophin
Started this discussion. Last reply by Amrit May 25, 2012. 11 Replies 0 Favorites
Halo
Started this discussion. Last reply by David May 29, 2012. 17 Replies 0 Favorites
Amrit's Page
Profile Information
- Name(s) of child(ren)/individual(s) with Duchenne:
- Jasdeep Singh
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12
- City:
- Cleveland
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Hi,my son is about 6 years.He is on the waiting list for this trial.we are from London ON where the ACE 031 is being conducted.I called my son's neurologist who is also running the trial here,and he told me that my son is supposed to enter the trial on June.I had the impression that they will go on with this trial.Moreover,It seems that this drug is working.Anyway,I am going now to get more news and if you like I can provide you with the updates.
My son uses:DFZ,ECGC,LOSARTAN (ON MY OWN),Vit D,fish oil,multivit,Coq10,Taurine(aminoacid),Calcium.
I highly recommend Losartan,and I bet that it might stop fibrosis+reduce the side effects of DFZ.
I do everything I can do then rely on God because doctors and medicine are just causes in any treatment,but God is the CAUSATIVE to this treatment because he is the omnipotent and merciful.
Keep the hope.Ii becomes closer
Hi,
Don't worry,I have strong feeling and faith that our sons will be rescued.Could you tell me what medications and supplements you use for your son?