PPMD Community

  • Female
  • Clay, KY
  • United States
Share on Facebook

Amelia's Friends

  • Lynne Nicholson
  • jiasusa5
  • Dennis Le
  • Dawn Steele
  • Prakash
  • Ann Martin
  • Trinh Nguyen
  • Aaron Wolf
  • Susan Parzymieso
  • Yenitza

Amelia's Discussions

DMD and type 1 Diabetes

Started this discussion. Last reply by Amelia Nov 10, 2014. 6 Replies

My son Hayden (5) was diagnosed with type 1 diabetes when he was 2.5. And just recently hit with muscular dystrophy diagnosis. Just wondering if there is anyone else with a son with type 1 diabetes…Continue


Amelia's Page

Profile Information

About my family:
My husband and I have been married 7 years, we have 3 children. Kendra 14, Hayden 5, Taylor 2.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:

Comment Wall (5 comments)

You need to be a member of PPMD Community to add comments!

Join PPMD Community

At 5:44am on January 23, 2015, Lynne Nicholson said…

Hi Amelia - how are you guys doing?

At 4:55pm on December 2, 2014, danielle said…

Hopefully they dont come back telling you it is dmd cause it is a rough road. But i wish u all the luck and strength in the world.

At 8:42pm on November 29, 2014, danielle said…

my son has dmd so i know a good bit of what you are going thru. He was diagnosed in 09 when he was 4 years old. I wont lie it is a long road ahead of you. If you would like to know more feel free to email me on here or u can email me at sdcl2006@yahoo.com.

At 11:54am on November 15, 2014, Lynne Nicholson said…

Hi Amelia. Yes Liam was symptomatically diagnosed a month ago. We had our first appointment with our local muscle clinic in Cape Town, South Africa last week where we met the team that would be caring for Liam. We are now just waiting for his DNA test results and see a genetic counsellor early December to get the lowdown. The testing that is available locally is only able to detect large deletions so if the results come back inconclusive he will need to go in for a biopsy. His next appointment is in early Feb. He has been put on Vitamin D and the prophylactic enalapril for his heart. Steroids will start in 6 months to a year. It has been so incredibly hard. Liam is our only child and we have been trying for a 2nd for the last 2 years. In a way I am very grateful as if I had brought another son into the world with this disease I don't know how I would have coped. The fact that there are parents on this site with 2 and sometimes 3 children with DMD is just heart rending.

When did you find out about Hayden?

At 8:40am on November 8, 2014, Yenitza said…
Amelia, I sent you a message. Once u complete the dna sequencing test Duchenne connect has people available to help understand the results, they provide alot of information and guidance. Hope this helps. You are welcome to reach out to me. You are not alone. GOD bless.

Need help using this community site? Visit Ning's Help Page.


© 2018   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service