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Amar Kumar
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  • Noida
  • India
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Amar Kumar's Discussions

My son is 4 and half years old he is suffering with DMD. deletion of (46-52)

Started this discussion. Last reply by Vikas Bahinipati Sep 12, 2015. 1 Reply

Please advice me. my son is suffering with DMD. He has deletion of exon(46-52).Continue

 

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Latest Activity

Cecilia grandson left a comment for Amar Kumar
"Employment opportunity in Pan Pacific Hotel, The manager of Pan Pacific Hotel Canada, wants suitable personal in which our hotel needs men and women who can work and live in Pan Pacific hotels here in Canada . Our hotel will be responsible for the…"
Mar 17, 2016
Amar Kumar replied to jiasusa5's discussion Nada Chair S'port Backer or Kiddy up
"Hi, If ur child 4-6 years old the order for Kiddy up kit or u can email to Nada Chair and take their recommendation . my son is around 5 years old, nada chair recommended kiddy up kit. thanks amar "
Sep 21, 2015
Amar Kumar joined PPMD's group
Sep 18, 2015
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India

For folks to share information about any research happening in India for Duchenne.
Sep 18, 2015
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Cincinnati Children's Hospital Medical Center

For families who take their children to Cincinnati Children's Hospital for DMD/BMD  medical care.See More
Sep 17, 2015
Amar Kumar joined PPMD's group
Sep 16, 2015
Kuldeep Singh left a comment for Amar Kumar
"Hi Amar I can imagine how hard it is for you and family For deletion there are lots of trials currently in process,some countries have approved medicine for them I am based in Auckland NewZealand and my son is of similar age and was diagnosed last…"
Sep 13, 2015
Vikas Bahinipati replied to Amar Kumar's discussion My son is 4 and half years old he is suffering with DMD. deletion of (46-52)
"Hi Amar, please check out on exon skipping meds of the flg co's- Biomarin & Sarepta."
Sep 12, 2015
Amar Kumar posted a discussion

My son is 4 and half years old he is suffering with DMD. deletion of (46-52)

Please advice me. my son is suffering with DMD. He has deletion of exon(46-52).See More
Sep 12, 2015
Vikas Bahinipati left a comment for Amar Kumar
"Hi Amar, good to be in touch. How's Yashvi doing. Do on pass your contact details too. Regards, Vikas."
Sep 12, 2015
Amar Kumar is now a member of PPMD Community
Sep 9, 2015

Profile Information

About me:
I am a Indian Chartered Accountant and father of one child who is 4 and half years old suffering with DMD.
About my family:
I have one child who is suffering with DMD
Name(s) of child(ren)/individual(s) with Duchenne:
Yashvi Bhardwaj
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Noida
State:
U P

Comment Wall (3 comments)

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At 2:00pm on March 17, 2016, Cecilia grandson said…

Employment opportunity in Pan Pacific Hotel, The manager of Pan Pacific Hotel Canada, wants suitable personal in which our hotel needs men and women who can work and live in Pan Pacific hotels here in Canada . Our hotel will be responsible for the payment for his/her air ticket feeding and accommodations only, so if you are interest you can contact us directory at this below e-mail address link...with your C.V. EMAIL:employmentpanpacific@torontomail.com we look forward for your prompt reply. Thanks. From the Hotel manager. Mrs Cecilia Grandson.

At 4:39pm on September 13, 2015, Kuldeep Singh said…

Hi Amar

I can imagine how hard it is for you and family

For deletion there are lots of trials currently in process,some countries have approved medicine for them

I am based in Auckland NewZealand and my son is of similar age and was diagnosed last year

If I can help somehow/anyhow...Please feel free to discuss it my email is techie_kuldeep@yahoo.co.nz

Take care

Kuldeep

At 2:49am on September 12, 2015, Vikas Bahinipati said…
Hi Amar, good to be in touch. How's Yashvi doing. Do on pass your contact details too. Regards, Vikas.
 
 
 

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