Amanda Trosper
  • 39, Female
  • Marion, Indiana
  • United States
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Amanda Trosper's Friends

  • Carlos Eduardo R. de Araújo
  • Lisa Craw
  • baljit kaur
  • Christina Kazmierczak
  • Gisel Rivero
  • Courtney
  • Jenna Shaw
  • vicki george
  • Marti
  • Ana
  • jessica and gary fluaitt
  • Melanie
  • Jennifer Collier
  • Tanya Fleming
  • Colin McKenzie

Amanda Trosper's Discussions

Divorce

Started this discussion. Last reply by Rhiannon Traigle Mar 24, 2010. 2 Replies

Prednisone

Started this discussion. Last reply by Karen Barnett Nov 6, 2009. 2 Replies

Does anybody's boy's with the DMD have Osteoporosis?

Started this discussion. Last reply by Jeffery Wilkinson Feb 27, 2009. 6 Replies

 

Give A Muscle For Damien

Profile Information

About me:
I am 31years old and I am getting married in October to a wonderful man that actually cares about us.. and I have two boys and I work and go to school I was a full time house wife but now I work and go to school and take care of my 9 year old son with DMD and my 5 year old son who is as healthy as can be.
About my family:
I have 2 kid's Damien 9 and Collin 5 and I love them very much
Name(s) of child(ren)/individual(s) with Duchenne:
Damien Trosper
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Gas City, Indiana

Casting Crowns

Casting Crowns
"Slow Fade"

Be careful little eyes what you see
It's the second glance that ties your hands as darkness pulls the strings
Be careful little feet where you go
For it's the little feet behind you that are sure to follow

It's a slow fade when you give yourself away
It's a slow fade when black and white have turned to gray
Thoughts invade, choices are made, a price will be paid
When you give yourself away
People never crumble in a day
It's a slow fade, it's a slow fade

Be careful little ears what you hear
When flattery leads to compromise, the end is always near
Be careful little lips what you say
For empty words and promises lead broken hearts astray

It's a slow fade when you give yourself away
It's a slow fade when black and white have turned to gray
Thoughts invade, choices are made, a price will be paid
When you give yourself away
People never crumble in a day

The journey from your mind to your hands
Is shorter than you're thinking
Be careful if you think you stand
You just might be sinking

It's a slow fade when you give yourself away
It's a slow fade when black and white have turned to gray
Thoughts invade, choices are made, a price will be paid
When you give yourself away
People never crumble in a day
Daddies never crumble in a day
Families never crumble in a day

Oh be careful little eyes what you see
Oh be careful little eyes what you see
For the Father up above is looking down in love
Oh be careful little eyes what you see

Amanda Trosper's Photos

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Amanda Trosper's Blog

MDA Camp

Posted on June 16, 2009 at 9:47pm 3 Comments

Damien my son went to his first MDA camp and he had a blast. He made best friends and everything. He loved it so much that he seems much happier.

Went To Our 6 month Checkup at Riley

Posted on May 16, 2009 at 11:00pm 3 Comments

It went fine Damien's muscle's are still the same as a year ago I'm excited for this. He needs to get some more blood work done but he does this every three months so normal routine stuff. I'm so happy his muscles are still the same. We are doing the Prednisone still the doctor thinks this will help him out. Our trip went really well though. Damien was excited because he didn't have to get bloodwork done that day he was happy. He's still able to walk and that's the best thing in the world to… Continue

Comment Wall (30 comments)

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At 11:23pm on April 21, 2009, jessica and gary fluaitt said…
Well,where to start,lol. He tries to ram people with his wheelchair,he throws things and started spitting on people. Then there is alot of verbal abuse he calls names and says very hateful things.It is very hard to deal with him the school is always calling me.We try talking to him and he also takes prozac for depression and anger also he shows signs of OCD an Tactile sensitivities.It has been so hard to deal with because I just want him to be happy and enjoy life but he can't when he gets so angry so often one thing can set him off.We have him in art therapy now,just stopped seeing a pyschiatrist no progress,I wish I had an answer on how to deal but I don't we just go one day at a time. It must be very hard for you him having autism ontop of the DMD,one main reason coy was never on prednisone was because his anger issues were already bad and we didn't want to make it any worse. Good Luck, Jessica
At 4:20pm on March 31, 2009, Linda said…
hi amanda..im sorry to have taken so long to reply, i don't get a chance to get on here like i would like to. my son avery has been in his chair for around two years. matthew my other son is still walking. its nice to meet you. i know its got to be so hard...i remember what it was like in the beginning.
At 11:15pm on March 12, 2009, Gisel Rivero said…
Hi Amanda, I hadn't logged on in awhile, it's good to hear that it's finally getting warmer for you all. This week has been a bit hard. Dylan should have turned 1 yrs old on March 11, so it's been a bad week so I really had to log in this week because although family and friends listen and try to understand they just don't. Thanks for all your support and I pray everyday that a cure is soon found.
At 7:00am on March 1, 2009, Tanya Fleming said…
Yes. espcially when they are really picky with me.
At 10:01am on February 21, 2009, Tanya Fleming said…
The vent issue doesn't offend in anyway.
It looks like you made it to "Give Kids the World trip." We have been their two times already. and the Disney trip is great for the kids but boys was I tired after the fact!!!!
I glad you made it
At 12:37pm on February 20, 2009, Tanya Fleming said…
Well sweetie, they had an older brother with DMD so they kinda knew what was coming. But getting the power chair is what made the difference. I make them feel like they are driving before any of their friends will. I put flames on the fenders and I pimp it up, which makes them feel like it is their car. I will send you some pictures if you would like for me too??? How old is your son at present, and has he been in a manuel chair?? I will be glad to help you in anyway I can.
I don't know if I helped you, but I hope so. I tell them I hate them too, but at least it is a cool one, not one that old people use. He will find out that all his friends will think it is cool and they want one, I am not kidding you. All the other kids want one.
At 10:09am on January 20, 2009, Jenna Shaw said…
Looks like you guys had a great time!! How was the trip?
At 12:19am on January 15, 2009, Gisel Rivero said…
HI hope all is well
xoxo
gisel
At 9:23am on January 11, 2009, Jenna Shaw said…
Hi Amanda, you guys are going to have a great time. Everyone is so nice.
Enjoy!!!!!
At 10:32am on January 9, 2009, Debbie Bogar said…
I just realized I didn't address one of your questions about the Prednisone. Bobby hasn't had any behavioral issues while on it. He does sometimes get really sad and cries - but usually something has tipped it off but it doesn't last. We have been lucky - he does very well in school with no issues outside of the normal realm of things. Have a great trip!!
 
 
 

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