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Alpa Khushalani
  • Female
  • Lake Zurich, IL
  • United States
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Alpa Khushalani's Friends

  • Chris
  • Sam
  • Jay Griffin
  • Limca Jhaveri
  • Shelly
  • Annie Kennedy
  • Rahul Deshpande

Alpa Khushalani's Discussions

Sarepta Exon Skipping 45 amenable - limited or no ambulation dose titration study is recruiting

Started this discussion. Last reply by Shelly Mar 13, 2016. 6 Replies

Dear Friends,Sarepta is running a trial at 3 sites recruiting a total of 12 patients for a dose escalation study of 12 weeks followed by open label extension of their exon skipping 45 drug SRP-4045…Continue

Tags: skipping, 45, exon, sarepta

Advice on getting a Service Dogs

Started this discussion. Last reply by Alpa Khushalani Oct 5, 2015. 3 Replies

Hello Friends,Our son Krishna is almost 8 yrs now and mobile for the most part. This year at PPMD we saw lots of families with service dogs and were strongly advised to get one for our son as it…Continue

Tags: assistance, dog, dogs, Service

Prednisone daily versus weekend (high dose 2 days per week)

Started this discussion. Last reply by Alpa Khushalani Apr 30, 2015. 3 Replies

Dear friends,Our son Krishna was diagnosed last Oct and he turned 7 in December 2014. He has been on a weekend dose of Prednisone for a little over 6 months now. We started at 50mg per day and have…Continue

Tags: dose, weekend, prednisone

 

Welcome, Alpa Khushalani!

Profile Information

About me:
I'm a stay at home mom enjoying time taking care of my 3 boys. Krishna (8 yrs), Eshan (4) and Vihaan (18 months) as of Dec 2015.
Name(s) of child(ren)/individual(s) with Duchenne:
Krishna
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
KILDEER
State:
Illinois

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