"Pat, I dont have words to THANK YOU for your vision, faith and leadership that has made this possible. I'm reading The Alchemist now and these words by Paulo Coelho only bring your face in front of my eyes. "And, when you want something,…"
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Alpa Khushalani
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- Lake Zurich, IL
- United States
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Alpa Khushalani's Discussions
Sarepta Exon Skipping 45 amenable - limited or no ambulation dose titration study is recruiting
Started this discussion. Last reply by Shelly Mar 13, 2016. 6 Replies 0 Favorites
Dear Friends,Sarepta is running a trial at 3 sites recruiting a total of 12 patients for a dose escalation study of 12 weeks followed by open label extension of their exon skipping 45 drug SRP-4045…Continue
Advice on getting a Service Dogs
Started this discussion. Last reply by Alpa Khushalani Oct 5, 2015. 3 Replies 0 Favorites
Hello Friends,Our son Krishna is almost 8 yrs now and mobile for the most part. This year at PPMD we saw lots of families with service dogs and were strongly advised to get one for our son as it…Continue
Tags: assistance, dog, dogs, Service
Prednisone daily versus weekend (high dose 2 days per week)
Started this discussion. Last reply by Alpa Khushalani Apr 30, 2015. 3 Replies 0 Favorites
Dear friends,Our son Krishna was diagnosed last Oct and he turned 7 in December 2014. He has been on a weekend dose of Prednisone for a little over 6 months now. We started at 50mg per day and have…Continue
Tags: dose, weekend, prednisone
Welcome, Alpa Khushalani!
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Profile Information
- About me:
- I'm a stay at home mom enjoying time taking care of my 3 boys. Krishna (8 yrs), Eshan (4) and Vihaan (18 months) as of Dec 2015.
- Name(s) of child(ren)/individual(s) with Duchenne:
- Krishna
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12
- City:
- KILDEER
- State:
- Illinois
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