Alissa
  • Female
  • Vermont
  • United States
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Alissa's Discussions

Good Doctor around New England

Started this discussion. Last reply by Lisa Marandino Jun 12, 2013. 1 Reply

Confused: Shouldn't a blood test and a full array show DMD?

Started this discussion. Last reply by Susan Rathfelder Jan 1, 2012. 3 Replies

 

Alissa's Page

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Alissa posted a discussion

Recess in winter

How do you all deal with winter and the snow and cold? Andrew seems to have a hard time when its cold and seems to get more muscle fatigued after recess. Not because of moving around but because he's not moving much and he's tensing his muscles because he's freezing. Do you all have a temperature that's the cutoff to allow your child out. Our school policy is 0 degrees. That is too cold for him. Any ideas what I can do about this?
Jan 28, 2015
Lisa Marandino replied to Alissa's discussion Good Doctor around New England
"Hi Alissa, We also have been going to Dr. Brian and are very disappointed he is no longer at MassGeneral. We went back there to see how Dr. Brian's replacement was. We were not impressed. We don't know where to turn. We did go out to Dr…"
Jun 12, 2013
Tammy Henegar replied to Alissa's discussion Back issues
"Our son is 7 and has also experience back pain recently. We have done x-rays and nothing seems to show as well. Everyone is telling us that it is his posture as well.  So we have just been trying to keep watch over him when he is sitting and…"
Apr 1, 2013
Shawn replied to Alissa's discussion Back issues
"We've found much relief through the use of several interventions: weekly visits with a good physical therapist (who is used to working on neck/shoulder/back strains/pain/etc.) who uses a TENS unit, ultrasound, soft…"
Mar 27, 2013
Alissa posted a discussion

Good Doctor around New England

Hi! We are in the search for a decent DMD Doctor. We used to travel to Philadelphia to see Dr. Finkel then he went to Orlando. We then went to Boston and saw Dr. Brian Tseng but he's gone now. We would like a Dr with knowledge in DMD. We are in Vermont. Thanks for any information you can provide!
Feb 25, 2013
SAHHID ZUBAIR replied to Alissa's discussion Back issues
"We pray for your son and wish that you pray for us"
Jan 22, 2013
Krista Johnson replied to Alissa's discussion Back issues
"Hi, our one son complains of back aches he does have compression fractures in his back, so he was put on a medication which I can't remember the name of at this moment sorry, it is given through a IV it takes 3 days and each time it take about…"
Jan 16, 2013
Susan Rathfelder replied to Alissa's discussion Confused: Shouldn't a blood test and a full array show DMD?
"Alissa, My son Jonathan's diagnosis was confirmed by a muscle biopsy. He has had the muscle biopsy tests at two different labs and 4 blood DNA tests and they have not been able to identify his particular mutation. I believe I have heard that…"
Jan 1, 2012

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Andrew
Age(s) of child(ren)/individual(s) with Duchenne:
0-3, 4-6
City:
Vermont

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At 8:09pm on November 19, 2008, Jenna Shaw said…
He has such pretty eyes...(little angel)
 
 
 

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