"I wish we lived closer, we would participate in your events. We also have two boys with DMD, they are 8 and 9. We live in Alberta, Canada. All the best in your fundraisers!
Jody
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Alison Willis
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- Fayetteville
- United States
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Profile Information
- About me:
- I am a mother of 3 boys with twins who are affected by DMD.
- About my family:
- My husband and I both work full time. We recently have started our own nonprofit organization, Two Smiles One Hope Foundation, to raise money for other nonprofits (PPMD, Charley's Fund, etc) who have already committed themselves to help end Duchenne. It's more work than I anticipated, but worth it. Please visit us at www.twosmilesonehope.com to learn more.
- Name(s) of child(ren)/individual(s) with Duchenne:
- Jack and Nolan
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12
- City and State:
- Fayetteville
- Country:
- New York
Comment Wall (10 comments)
- At 10:49am on May 23, 2012,
Terry Porcaro said… Hi Alison: I just wanted to introduce myself and show support for your organization. I recently saw your foundation logo, and it reminded me so much of my own two grandsons. My name is Terry Porcaro, I am a member of PPMD and the grandmother of two beautiful little boys also diagnosed with DMD. Cole, age 7 ½ and Jack age 6. My grandsons live in North Haledon, NJ with their mom and dad, Lisa and Joe Nilsson. If you friend me on facebook, you can see pictures of my two little guys. I’m listed on facebook as Theresa Bizzaro-Porcaro. With warm regards, Terry
- At 10:43pm on April 17, 2012,
Jody Zdrill Steinke said… I wish we lived closer, we would participate in your events. We also have two boys with DMD, they are 8 and 9. We live in Alberta, Canada. All the best in your fundraisers!
Jody
- At 6:55pm on March 13, 2011,
kimmy watters said… hi alison how are you i realy enjoy looking at your pictures of your boys very beautiful
i to try help darius weems. kimmy watters
- At 1:14pm on July 6, 2010, David G Evans said…
- Hi Alison
Hi this is David Evans
I am 17 years old and I have Duchenne Muscular Dystrophy. I live in Robesonia PA. I have been searching for a friend or someone to talk to with the same condition.
- At 3:22pm on February 25, 2010,
Joanna Johnson said… - Alison, It was great to see you and your Dad in DC again and to meet your boys. What handsome fellows!
- At 9:16am on March 30, 2009,
Mortman said… - Hi Allison,
Thank you for hosting Darius this past Friday in Cicero. Mike really enjoyed meeting him! Kathy was glad to meet you and your husband.
Ed Mort
- At 12:51am on July 21, 2008,
Rhiannon Traigle said… - Alison,
I am so glad I got to meet you! But,I am upset that we never got to sit down and talk! I definately want to learn more about what ya'll are doing and try to get something going myself. When you have time (which I know is not often with work and kiddos!) I will give you my number or get yours so we can talk!
Rhi
- At 3:05pm on June 18, 2008,
Julie Garcia said… - Very nice website!
All the best to you and your family!
Julie
- At 2:14pm on June 18, 2008,
StaffRyan Fischer said… - I love your page! Hope all is going well :)
- At 12:59am on May 16, 2008, Rhiannon Traigle said…
- Alison,
I went to you website. It is awesome!!! Your boys are all sooo handsome! I would love to hear more about your non-profit. I work in non-profit now, but I have always wanted to start my own and now I have a very personal reason to. I talked to my accountant last year about setting up a 501 c 3, but I have put it off due to funding for the organization and me trying to figure out how I can generate a salary from it so I could devote myself to it full-time. I applaude ya'll for creating that organization for your boys!
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Events
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Gala Blue Ball
May 26, 2012 at 6:30pm to May 27, 2012 at 1am – Esplanade Hotel, Fremantle
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