I'm a mom of five great kids and wife of one great man! I love being a mom, homeschooling, time with friends and reading. Jesus Christ is my lord and without Him, I could not walk this journey. He is all to me.
About my family:
We have five children, 3 of whom are adopted. We love children and always wanted a big family. So, we have one! Duchenne's has been an unexpected blow but we are walking through this one day at a time.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
Comment Wall (2 comments)
You need to be a member of PPMD Community to add comments!
Thanks for responding to my request. I'm so pleased that you are willing to answer some of our questions. I will be meeting shortly with my team here at Siren and we should be able to get some questions to you by the end of the week.If you don't mind, I would like to add you as a friend on this site so I can send you the questions directly.
My name is Ron Kohudic. I work at Siren Interactive, a digital agency in Chicago that is focused on understanding the needs of patients and physicians dealing with rare diseases. I am part of a small group that is doing research in order to develop new technology to help boys with DMD and their parents, caregivers and health care professionals within the community.
Please let us know if you would be willing to speak with one of my colleagues or I in order to help us better understand DMD from your perspective, as well as to better understand your needs or any specific areas that we could potentially assist you in treating boys with DMD.
Please let me know if we can contact you at your convenience.
Thank you for your time and cooperation in this effort.