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Alexandre da Costa e Silva
  • 47, Male
  • Salvador, BA
  • Brazil
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Alexandre da Costa e Silva's Groups

 

Alexandre da Costa e Silva's Page

Latest Activity

Alexandre da Costa e Silva commented on Amrit's group Exon skipping 53
"Hi Amrit and Connie. My son has deletion 48-52 and need 53 skipped also.  We live in Brasil and he was diagnosed when he was 3yr old. Since than he has received all the available treatment like physiotherapy, hydrotherapy, and…"
Feb 17
Alexandre da Costa e Silva replied to Nadja's discussion How much and how to give in the group Idebenone
"I give 500 mg idebenone pills daily in the breakfast to my 10 years old son. I bought it from http://www.smartpowders.com. I hope this help."
Dec 22, 2014
Alexandre da Costa e Silva joined Nimi Langer's group
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Idebenone

As one of the only supplements passing phase IIa with prove of safety and efficacy for our kids (450 mg daily)idebenone phase IIa.pdf, we should start looking at this one seriously.See More
Dec 22, 2014
Alexandre da Costa e Silva replied to Sharon Hesterlee's discussion Japanese company to start exon-53 skipping trial (morpholino)
"Hi Sharon. My name is Alexandre and my son Rafael has deletion of Exons 48-52. Do you have any news about this Japanese study? Thank you."
Sep 8, 2014
Alexandre da Costa e Silva commented on Amrit's group Exon skipping 53
"Dear All, My son, Rafael, has a deletion of exons 48 - 52, so he needs to skip 53 as well. Is this group still active ?"
Sep 8, 2014
Alexandre da Costa e Silva joined Amrit's group
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Exon skipping 53

Hi,My son has deletion 48-52 and need 53 skipped. Want to get in touch with any one who needs 53 skipped.Thanks,AmritSee More
Sep 8, 2014

Profile Information

About me:
I have 39 years of age, I am a telecommunications engineer.
About my family:
I am married to Sheila and I have 2 children, Giovanna, a 2 years old girl , and Rafael, a 5 years old boy.
Name(s) of child(ren)/individual(s) with Duchenne:
Rafael
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Salvador, BA

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