Alejandra Lagffer
  • Female
  • Guatemala
  • Guatemala
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  • RAKTIM SINGH
  • Traci Griffin
  • Eileen DeLong

Alejandra Lagffer's Discussions

latest news on treatments to stop duchenne

Started this discussion. Last reply by R. Gardiner Aug 15, 2010. 36 Replies

even though exon skiping is a very promising treatment is not for all the kids with dmd if the error is in the first exons or in the last they are not ellegible if the exon dont match they are also…Continue

Tags: dmd, for, solution, another

please watch this video on a succefull story with dmd on stem cells thank you

Started this discussion. Last reply by Alejandra Lagffer May 17, 2010. 5 Replies

Success in stem cellshttp://www.youtube.com/watch?v=Jyt2LHayjcsa doctor is willing to have another phase of a trial on stem cells he already…Continue

Tags: invetigation, the, continue, to, funds

 

Alejandra Lagffer's Page

Latest Activity

Alejandra Lagffer replied to maxine Strydom's discussion IDEBENONE
"I would like to know where can I buy idebonde? thank you"
Oct 17, 2011
Alejandra Lagffer replied to maxine Strydom's discussion IDEBENONE
"where can you buy idebone?"
Oct 10, 2011
Alejandra Lagffer commented on Eileen DeLong's group Exon Deletion 3-7
"hello I would like to know if there is an exon skiping if the xon 3 is deleted?"
Aug 21, 2011
Alejandra Lagffer and Traci Griffin are now friends
Jul 28, 2011
Alejandra Lagffer replied to sandy's discussion growth hormone
"Hello I am just to take a decision on giving my soon the grown hormone not for the heigh issue but for him to recover strenght he is know taking deflazacort and the doctor told us he uses genotropin for this is this safe? Can this really help my son…"
Apr 28, 2011
Alejandra Lagffer replied to Janine's discussion Growth hormone treatment
"I am for Guatemala whre can I get this treatment? thank you"
Apr 13, 2011
Alejandra Lagffer replied to Janine's discussion Growth hormone treatment
"I am for Guatemala whre can I get this treatment? thank you"
Apr 13, 2011
Alejandra Lagffer joined Eileen DeLong's group
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Exon Deletion 3-7

Connect with other families with exon deletion 3-7.
Aug 2, 2010
Alejandra Lagffer joined Kari's group
Jul 30, 2010
Alejandra Lagffer posted a discussion

utrophin

even though exon skiping is a very promising treatment is not for all the kids with dmd if the error is in the first exons or in the last they are not ellegible if the exon dont match they are also not ellegible
Jul 27, 2010
Alejandra Lagffer posted a photo

DSC01459

cruise vacation
May 14, 2010
Alejandra Lagffer posted a discussion

Stem Cells sucess

Success in stem cellshttp://www.youtube.com/watch?v=Jyt2LHayjcsa doctor is willing to have another phase of a trial on stem cells he already had 4 cases in which the kids had normal dintrophyn levels See More
May 14, 2010
Alejandra Lagffer joined PPMD's group
Jan 14, 2010

Profile Information

About me:
I am a mother with an nine year old son with duchenne
About my family:
I have just one son
Name(s) of child(ren)/individual(s) with Duchenne:
Jose Eduardo Titus
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Guatemala

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Comment Wall (2 comments)

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At 5:56am on January 18, 2010, RAKTIM SINGH said…
Hi,
For my kid also, report says exon 46 to 50 deletion. I am trying to form parent group with kids having similar deletion.
You can contact me at raktim_singh@yahoo.in

Raktim
India
At 1:39pm on January 14, 2010, Alejandra Lagffer said…
Hello I have an eight year old son who has been diagnosed with duchenne he is not able to go to school because he has some troubled learning reading and interacting with the rest of the kids. And I was wondering what are the latest medical advances in fighting duchenne
 
 
 

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