Alejandra Lagffer
  • Female
  • Guatemala
  • Guatemala
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  • RAKTIM SINGH
  • Traci Griffin
  • Eileen DeLong

Alejandra Lagffer's Discussions

latest news on treatments to stop duchenne

Started this discussion. Last reply by R. Gardiner Aug 15, 2010. 36 Replies

even though exon skiping is a very promising treatment is not for all the kids with dmd if the error is in the first exons or in the last they are not ellegible if the exon dont match they are also…Continue

Tags: dmd, for, solution, another

please watch this video on a succefull story with dmd on stem cells thank you

Started this discussion. Last reply by Alejandra Lagffer May 17, 2010. 5 Replies

Success in stem cellshttp://www.youtube.com/watch?v=Jyt2LHayjcsa doctor is willing to have another phase of a trial on stem cells he already…Continue

Tags: invetigation, the, continue, to, funds

 

Alejandra Lagffer's Page

Profile Information

About me:
I am a mother with an nine year old son with duchenne
About my family:
I have just one son
Name(s) of child(ren)/individual(s) with Duchenne:
Jose Eduardo Titus
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Guatemala

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Comment Wall (2 comments)

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At 5:56am on January 18, 2010, RAKTIM SINGH said…
Hi,
For my kid also, report says exon 46 to 50 deletion. I am trying to form parent group with kids having similar deletion.
You can contact me at raktim_singh@yahoo.in

Raktim
India
At 1:39pm on January 14, 2010, Alejandra Lagffer said…
Hello I have an eight year old son who has been diagnosed with duchenne he is not able to go to school because he has some troubled learning reading and interacting with the rest of the kids. And I was wondering what are the latest medical advances in fighting duchenne
 
 
 

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