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Alejandra Lagffer
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Alejandra Lagffer's Discussions
latest news on treatments to stop duchenne
Started this discussion. Last reply by R. Gardiner Aug 15, 2010. 36 Replies 0 Favorites
even though exon skiping is a very promising treatment is not for all the kids with dmd if the error is in the first exons or in the last they are not ellegible if the exon dont match they are also…Continue
please watch this video on a succefull story with dmd on stem cells thank you
Started this discussion. Last reply by Alejandra Lagffer May 17, 2010. 5 Replies 0 Favorites
Success in stem cellshttp://www.youtube.com/watch?v=Jyt2LHayjcsa doctor is willing to have another phase of a trial on stem cells he already…Continue
Tags: invetigation, the, continue, to, funds
Alejandra Lagffer's Page
Profile Information
- About me:
- I am a mother with an nine year old son with duchenne
- About my family:
- I have just one son
- Name(s) of child(ren)/individual(s) with Duchenne:
- Jose Eduardo Titus
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12
- City:
- Guatemala
Alejandra Lagffer's Photos
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For my kid also, report says exon 46 to 50 deletion. I am trying to form parent group with kids having similar deletion.
You can contact me at raktim_singh@yahoo.in
Raktim
India