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Alejandra Lagffer
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Alejandra Lagffer's Discussions
latest news on treatments to stop duchenne
Started this discussion. Last reply by Rick Gardiner Aug 15, 2010. 36 Replies 0 Favorites
even though exon skiping is a very promising treatment is not for all the kids with dmd if the error is in the first exons or in the last they are not ellegible if the exon dont match they are also…Continue
please watch this video on a succefull story with dmd on stem cells thank you
Started this discussion. Last reply by Alejandra Lagffer May 17, 2010. 5 Replies 0 Favorites
Success in stem cellshttp://www.youtube.com/watch?v=Jyt2LHayjcsa doctor is willing to have another phase of a trial on stem cells he already…Continue
Tags: invetigation, the, continue, to, funds
Alejandra Lagffer's Page
Latest Activity
Alejandra Lagffer commented on Eileen DeLong's group Exon Deletion 3-7"hello I would like to know if there is an exon skiping if the xon 3 is deleted?"
Alejandra Lagffer replied to sandy's discussion growth hormone"Hello I am just to take a decision on giving my soon the grown hormone not for the heigh issue but for him to recover strenght he is know taking deflazacort and the doctor told us he uses genotropin for this is this safe? Can this really help my son…"
Alejandra Lagffer replied to Janine's discussion Growth hormone treatment"I am for Guatemala whre can I get this treatment? thank you"
Alejandra Lagffer replied to Janine's discussion Growth hormone treatment"I am for Guatemala whre can I get this treatment? thank you"
Alejandra Lagffer posted a discussionutrophin
even though exon skiping is a very promising treatment is not for all the kids with dmd if the error is in the first exons or in the last they are not ellegible if the exon dont match they are also not ellegible
Alejandra Lagffer posted a video'Extraordinary Measures' Trailer HD
Based on the true story of John and Aileen Crowley, who finance a cure for a rare disease that is killing two of their children.
Alejandra Lagffer posted a discussionStem Cells sucess
Success in stem cellshttp://www.youtube.com/watch?v=Jyt2LHayjcsa doctor is willing to have another phase of a trial on stem cells he already had 4 cases in which the kids had normal dintrophyn levels See More
Profile Information
- About me:
- I am a mother with an nine year old son with duchenne
- About my family:
- I have just one son
- Name(s) of child(ren)/individual(s) with Duchenne:
- Jose Eduardo Titus
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12
- City and State:
- Guatemala
- Country:
- Guatemala
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Comment Wall (2 comments)
- At 5:56am on January 18, 2010,
RAKTIM SINGH said… - Hi,
For my kid also, report says exon 46 to 50 deletion. I am trying to form parent group with kids having similar deletion.
You can contact me at raktim_singh@yahoo.in
Raktim
India
- At 1:39pm on January 14, 2010, Alejandra Lagffer said…
- Hello I have an eight year old son who has been diagnosed with duchenne he is not able to go to school because he has some troubled learning reading and interacting with the rest of the kids. And I was wondering what are the latest medical advances in fighting duchenne
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Gala Blue Ball
May 26, 2012 at 6:30pm to May 27, 2012 at 1am – Esplanade Hotel, Fremantle
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