Adele
  • Female
  • Columbia, MD
  • United States
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Adele's Friends

  • Ann Lucas
  • Gauri Mhatre
  • Teri M. Renken
  • Melissa Schrock
  • leeann lane
  • anne
  • Vickie Lee Beard
  • Eileen DeLong
  • Katherine M. Reynoldson
  • Ana
  • Kimberly Foernsler
  • MommaToo
  • Pat Moeschen
  • Tanya Fleming
  • Adele

Adele's Discussions

Josh Winheld

Started this discussion. Last reply by kathy mcdonald Dec 14, 2009. 3 Replies

Getting help to see doctors outside of your area

Started this discussion. Last reply by Eileen DeLong Oct 24, 2008. 11 Replies

 

Adele's Page

Profile Information

About me:
Mom to Jason born 4/25/85, which makes him 23 now. Jason is doing well. He has a deletion at exon 46 -52? We are not sure where it ends as the tests were done back in 1989 and the technology was there yet.
About my family:
I'm a single mom of two sons, Josh, the eldest and his younger brother Jason who has DMD.
Name(s) of child(ren)/individual(s) with Duchenne:
Jason
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older
City:
Columbia

Adele's Photos

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Comment Wall (11 comments)

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At 11:43am on February 8, 2012, Teri M. Renken said…

Adele,

 

That is incredible. Thank you for those group names, I will look into them.

Teri

At 2:56pm on March 11, 2010, Melissa Schrock said…
Adele, my son is 8. He was diagnosed at 8months. So, its been a long road. But we are going to keep pushing! Thank you for all of your knowledge on DMD support!
At 5:33pm on September 30, 2009, Evelyn said…
HI there
My son is 3 1/2 with deltion 48 and 49 at least. when was your son diagnosed and what symptoms did he have?
Thanks
Evelyn
At 5:03pm on August 14, 2009, anne said…
it's great to hear jason is doing so well : )
fred is 11, he went off his feet quite suddenly after a fall may 08; i find it hard at times coping with him physically, but he makes it easier being mainly a happy lad
fred is my youngest child, my others are 21, 19, 17... 2 girls and a boy, all unaffected by dmd
i think fred is doing quite well, his heart and lung function seem ok at the moment.... the doctors are quering his bone density, so he's had scans and bloods, just waiting to hear back
in september fred starts his senior school, it's a main stream school with a special unit that give extra suppport to kids with physical disabilities. it's a big step, all new kids... and a new school uniform, blazer and tie!! he's so not looking forward to that !
you take care x
anne x
At 4:18pm on August 11, 2009, anne said…
hi adele
wow! snap! i was beginning to think he was unique : )
it's weird to say, but it's really nice to find another lad with the same deletion... i'm sat here typing with a smile on my face!
hope you and your family is keeping well xx
At 11:40am on February 15, 2009, Julie Garcia said…
Adele,

It was great to see you and Jason. Jason does look good. Nice to meet Josh and his future bride too!

Thanks for letting me stay too.

Take care,

Julie
At 2:20pm on November 30, 2008, Julie Garcia said…
Hey there!

Happy holidays!

Julie and family
At 10:12pm on August 18, 2008, Adele said…
Hello!
How freaky was it to see that I had added myself as a friend haha. Nice to meet you Adele!

~adele
At 2:49pm on August 18, 2008, Tanya Fleming said…
Thank you so much for your comments. I want you to know that my faith keeps me going, knowing I will see him again. How old is your son?
No I didn't go this year. I am planning on going next year though.
I hope all goes well with your week
Tanya
At 9:08am on August 16, 2008, Adele said…
Hi Ana, welcome to the group. I'm so glad that you are staying in touch with the DMD community.

Adele
 
 
 

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