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Abby Bronson
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  • Bethesda, MD
  • United States
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Abby Bronson, Senior Vice President, Research Strategy

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Abby Bronson posted a blog post

PPMD Research Update: September 2017

As you know by now, September is Duchenne Action Month. And while the idea behind this campaign is to encourage our community to take action, the momentum in Duchenne research has never felt more active...and…See More
Thursday

Profile Information

About me:
Senior Vice President, Research Strategy
About my family:
One son, one dog
City:
Bethesda
State:
MD

Abby Bronson's Blog

PPMD Research Update: September 2017

Posted on September 21, 2017 at 12:00pm 0 Comments

As you know by now, September is Duchenne Action Month. And…

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FDA Announces Approval of First Gene Therapy in the United States

Posted on August 31, 2017 at 1:00pm 0 Comments

Yesterday, Kymriah, a gene therapy made by Novartis that treats an aggressive type of leukemia was approved for children and young adults. The new commissioner of the FDA, Dr. Scott Gottlieb,…

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Webinar Q&A: Gene Therapy for Duchenne

Posted on August 23, 2017 at 8:00pm 0 Comments

With trials in gene therapy on the horizon, and terms like "cassette", "construct", "promoter", and "transduce" being thrown around, we want to ensure that you, our Duchenne Community, has all the knowledge you need to navigate the world of gene therapy.



Earlier this…

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At 4:27am on January 22, 2017, Margarita Yashchenko said…

Dear, Abby Bronson!  I prepared a project to help children in Ukraine, I sent it to our Ministry. I constantly learn something about muscular dystrophy from your sites. Finally, the Ukrainian neuroscientists have interested in my materials. I have seen that I should help not only my family but also to other families in Ukraine. We must see how parents live in USA.I invite you and somefamily to us in Ukraine. Our family is ready to welcome you and we want very strong to stay to summer camp in USA with my son. He is 9,5. Help us. How I can do it? In Ukraine isn`t camp for Muscular Dystrophy. I'm afraid to lose time. 

At 4:02am on December 23, 2016, Nadja said…
Hi abby
Our Company would make a donation for crispr
Can we get a donation receipt?
Thanks
Nadja
At 2:27pm on March 28, 2016, Margarita Yashchenko said…

Hello! My name is Margarita, I live in Ukraine, Kirovograd
About my family:
. I have a son, who is ill with Duchenne. He is now 9 years old. Doctors diagnosed the illness at the age of 6.5 . In Ukraine, no one treats such children. Therefore, we are forced to travel to Israel each year to see a neurologist. There we learned how to swim in the pool, ride a horse, do special exercises (such as stretching) every day. For 2 years we have been able to stop the disease. But I would like to communicate with the American parents and doctors who probably know more about new medicines or methods for treating this condition.
I want to participate in different Parents’ Projects for Muscular Dystrophy online. There may already be drugs that can cure my son. Please help us, because we are lonely here with our problem.

At 9:42pm on February 6, 2016, Jay Griffin said…
How are you!
 
 
 

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