"Three months have passed since the worrisome news that AVII had dipped to around $.60 per share. It has steadily risen since, I'm happy to say, and today it's hovering around $1.60! If only I'd had truckloads of money to…"
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Aaron Wolf
- Male
- Pecatonica, IL
- United States
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Latest Activity
Aaron Wolf commented on Pat Furlong's blog post AVI's Duchenne Program"Thank you, Pat. I'm not a rich man, but I just bought some AVII stock, and will continue to do so when funds are available. I will encourage them any way I can."
Aaron Wolf replied to RAKTIM SINGH's discussion AVI Enters Into Collaborations for the Development of Two Additional Exon-Skipping Products for Duchenne Muscular Dystrophy (DMD)"Karen, I'm no M.D., but as I read the chart, it looks like the skipping of exon 44 would help. (As it happens, that's what my boy, Carl, needs. He has a deletion of 40 through 43.) And the good news is that the drug is in…"
Tammy Angel commented on Aaron Wolf's blog post Easter With Duchenne"Aaron, thank you for your words. I have been down the road each and every one who has a child with duchenne's is l travelling, and I must say, take time, each of you, to enjoy your sons. Enjoy everything you do with them,…"
"wow thank you for those amazing words."
Lorrie Wolf commented on Aaron Wolf's blog post Easter With Duchenne"Thank you, Dear. You always know how to say what I'm feeling. Love you!"
Aaron Wolf commented on Aaron Wolf's blog post Easter With Duchenne"Thank you all. I'm honored that Pat read my post. God bless you, warrior for our boys!
Yes, Veronica! Thank you!"
StaffPat Furlong commented on Aaron Wolf's blog post Easter With Duchenne
"Dear Aaron, Thank you for this beautiful blog.
Warmest regards,
Pat"
Veronica E. commented on Aaron Wolf's blog post Easter With Duchenne"Would it be OK with you if I share this with my Facebook friends?
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Veronica E. commented on Aaron Wolf's blog post Easter With Duchenne"Aaron, bless you for sharing your thoughts with us. You have been able to say so elequently what I've been thinking but didn't have the skills to express. In the almost three years since Max's diagnosis, I have struggled with my faith…"
Susan Rathfelder commented on Aaron Wolf's blog post Easter With Duchenne"Thank you for sharing. Since Jon's diagnosis almost 11 years I have found that my faith is much stronger and deeper than I ever imagined."
Catherine Collins commented on Aaron Wolf's blog post Easter With Duchenne"This is our first Easter with Duchenne too. You are right - it will never be the same again but that it's not all bad. We missed so much of life in the cocoon of good health. Here's hoping we can keep living in color instead of black…"
Profile Information
- About me:
- I'm a writer and editor living in Northern Illinois. I'm an LCMS Lutheran and a Church historian. And I pray that God will grant us a cure for DMD, and that He will give us patience to endure while we wait.
- About my family:
- My sweet wife's name is Lorrie, and she teaches our children at home and at a Classical Conversations co-op. Our precious children are Gus, Kate (Type 1 diabetic), Carl (DMD), Nora, Josie, and Peter. We live in the country and raise chickens and vegetables. Our handsome Carl was diagnosed in August 2010. Carl has the 40-43 deletion.
- Name(s) of child(ren)/individual(s) with Duchenne:
- Carl
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12
- City and State:
- Pecatonica, IL
- Country:
- USA
Aaron Wolf's Blog
Easter With Duchenne
Posted on April 21, 2011 at 9:00pm 10 Comments 2 Favorites
What follows are but one Christian's reflections on our first Easter with Duchenne. I'm not out to convert anybody, but only to share with those who share our beliefs.
This Sunday will be our first Easter with Duchenne. Not that its ugly face wasn't there before; we just didn't realize it.
Since last Easter, my wife and I have experienced a great deal. Bitter tears, dark nights of the soul, doubts, desperate prayers, DNA tests, diagnosis, healthcare shuffling,…
ContinueComment Wall (2 comments)
- At 1:26pm on April 22, 2011,
Jennifer Edge said… Thanks for saying what most of us Christian's are thinking but can't put into words. God has blessed you with a great talent. I hope you don't mind but I have to share Easter with Duchenne with the people from my Parrish. God bless you and your family.
- At 10:44am on January 25, 2011,
StaffPPMD said… Hi Aaron, please don't hesitate to contact PPMD if you need anything. We're glad you found us & this community!
Need help using this community site? Visit Ning's Help Page.
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Events
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Gala Blue Ball
May 26, 2012 at 6:30pm to May 27, 2012 at 1am – Esplanade Hotel, Fremantle
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