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Aaron Wolf Male Pecatonica, IL United States: Favorite

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About me:: I'm a writer and editor living in Northern Illinois. I'm an LCMS Lutheran and a Church historian. And I pray that God will grant us a cure for DMD, and that He will give us patience to endure while we wait.

About my family:: My sweet wife's name is Lorrie, and she teaches our children at home and at a Classical Conversations co-op. Our precious children are Gus, Kate (Type 1 diabetic), Carl (DMD), Nora, Josie, and Peter. We live in the country and raise chickens and vegetables. Our handsome Carl was diagnosed in August 2010. Carl has the 40-43 deletion.

Name(s) of child(ren)/individual(s) with Duchenne:: Carl

Age(s) of child(ren)/individual(s) with Duchenne:: 7-12

City:: Pecatonica, IL

Aaron Wolf's Blog

Easter With Duchenne

Posted on April 21, 2011 at 9:00pm 10 Comments 2 Favorites

What follows are but one Christian's reflections on our first Easter with Duchenne. I'm not out to convert anybody, but only to share with those who share our beliefs.

This Sunday will be our first Easter with Duchenne. Not that its ugly face wasn't there before; we just didn't realize it.

Since last Easter, my wife and I have experienced a great deal. Bitter tears, dark nights of the soul, doubts, desperate prayers, DNA tests, diagnosis, healthcare shuffling,…

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At 1:26pm on April 22, 2011, Jennifer Edge said…: Thanks for saying what most of us Christian's are thinking but can't put into words. God has blessed you with a great talent. I hope you don't mind but I have to share Easter with Duchenne with the people from my Parrish. God bless you and your family.

At 10:44am on January 25, 2011, StaffPPMD said…: Hi Aaron, please don't hesitate to contact PPMD if you need anything. We're glad you found us & this community!