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Wellness Support

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Dealing with chronic illness can challenge anyone. At times families and individuals may need someone other than a friend or family member to help deal with the stresses this may be adding to their lives.  Options range from private professional help to moderated group discussions and more. Learning appropriate coping strategies, having an empathetic person listen to your concerns or getting help managing day to day problems may improve your self esteem making it easier to care for another living with chronic illness. Addition help may be needed for the affected person who may also need support, counseling or someone to talk to outside their immediate circle of care. 

Helpful Links

  • ARCH Respite Locator

    Searchable state respite services 

  • Bandaides & Blackboards

    Website focused on families dealing with chronic illness. Many stories written by and for patients and families dealing with chronic illness. 

  • Caring Bridge

    Personalized website designed to keep friends and families informed about a loved one’s status

  • Compassionate Friends

    The Compassionate Friends provides highly personal comfort, hope, and support to every family experiencing the death of a son or a daughter, a brother or a sister, or a grandchild, and helps others better assist the grieving family.

  • Depression and Disability: A Practical Guide

    The North Carolina Office on Disability and Health

  • Family Caregiver alliance

    Searchable state resource locator for family caregiver services

  • How to Cope with Sudden Illness

    Tips on developing coping mechanisms for sudden illness/disability 

  • Intensive Care

     A book by Mary-Lou Weisman about loving and caring for a child with Duchenne Muscular Dystrophy

  • Parenting a Child with Special Needs

    National Information Center for Children and Youth with Disabilities article from a parent of a child with a disability

  • TheStatus.com

    Web-tool designed to help family and friends stay updated about a loved one's status

For Siblings

Looking for state-specific resources? Check out our state-specific page

What resources would you like to add or update?
Email your suggestions to resources@parentprojectmd.org!

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