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Funding Sources

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The diagnosis of Duchenne muscular dystrophy is difficult for families. What makes it more challenging are expenses associated with caring for an affected person. Wheelchairs, ramps, vans, and home modifications can be expensive and a burden to families.

Limits on private and government provided insurance mean much of the cost is born by families and other funding sources are limited. Nonprofit groups such as fraternal organizations, churches, and a few devoted to helping the disabled may provide help.  

ABLE Accounts

  • What is the ABLE Act?

    Whiteboard video that outlines the ABLE Act

  • ABLE National Resource Center

    The ABLE National Resource Center (ANRC) is a collaborative that brings together the investment, support and resources of some of the country's largest and most influential national disability organizations in an effort to accelerate the design and availability

  • ABLEnow

    ABLEnow savings accounts help individuals with disabilities save money to pay for qualified expenses, without being taxed on the earnings – and in most cases, without losing eligibility for certain means-tested benefit programs.

     

Home Modifications

Medical Needs

  • The Assistance Fund
    Foundation that helps families facing high medical out-of-pocket costs by providing financial assistance for copayments, coinsurance, deductibles, and other health-related expenses

  • Aubrey Rose Foundation

    Provides financial assistance to help cover medical bills for families of children with a life-threatening medical condition

  • First Hand Foundation

    First Hand Foundation is a public 501(c)(3) organization that provides funding for individual children—both domestically and globally—who need assistance with clinical necessities (such as surgery, medication and therapy), medical equipment and travel related to care.

  • Kids Mobility Network

    Kids Mobility Network is a 501(c)3 non-profit organization providing children with disabilities with durable medical equipment such as wheelchairs, walkers and other medical equipment.

  • The Lindsay Foundation

    The Lindsay Foundation is a 501(c)3 non-profit organization whose primary goal is to assist families with the resources necessary to provide medical treatment, therapies, and rehabilitative equipment in order to improve the quality of life for their special-needs children.

  • Miracle Flights

    Miracle Flights provides financial assistance to low-income children for commercial air travel to obtain special medical care

  • NeedyMeds

    NeedyMeds is a 501(c)(3) national non-profit information resource dedicated to helping people locate assistance programs to help them afford their medications and other healthcare costs.

  • Project Mend
    Project MEND is committed to improving the quality of life for individuals living with disability and illness through the refurbishment, reuse and distribution of medical equipment and other assistive technology. 
  • The Self-Sufficiency Grant

    This grant from ModestNeeds.org seeks to offer support to individuals and families who need assistance, but don’t qualify as being “low-income” households. Their goal is to help ensure that families living just above the poverty line don’t have to spend their last dollar on necessities like adaptable home repairs.

  • United Healthcare Children’s Foundation

    The UnitedHealthcare Children’s Foundation (UHCCF) is a 501(c)(3) charitable organization that provides medical grants to help children gain access to health-related services not covered, or not fully covered, by their family’s commercial health insurance plan.

  • Variety –The Children’s Charity

    Group that offers grants for children with special needs


Other Helpful Links

Tax Deductions

Looking for state-specific resources? Check out our state-specific page

What resources would you like to add or update?
Email your suggestions to resources@parentprojectmd.org!

 

While Parent Project Muscular Dystrophy (PPMD) strives to make the information on this website as timely and accurate as possible, PPMD makes no claims, promises, or guarantees about the accuracy, completeness, or adequacy of the contents of this site, and expressly disclaims liability for errors and omissions in the contents of this site. Reference in this site does not constitute endorsement or recommendation by PPMD. Click here to review PPMD’s policy on corporate support.

 

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