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Connecting with CA Families

Connect with California Duchenne Families on Facebook through our FACES Program. You will need to request to be added to the group first.

Northern California  

Coordinators: Danielle Bath, Leeandra Archdeacon, Julie Garcia, and Christina Adamson

Southern California 
Coordinators: Kelly May and Polly Sundeen


Accessibility and Recreation

  • Special Olympics Northern California
    Website
  • California State Parks Disabled Discount Pass
    For permanently disabled persons, this pass entitles the bearer to a 50% discount for vehicle day-use, camping and boat use fees at California State parks operated units (except Candlestick SRA). Cost is $3.50 for a Lifetime Pass.
    Website
  • BORP (Bay Area sports)
    Power Soccer
    Website
  • Axis Dance Company (Oakland)
    Dance classes for disabled children & mixed ability dance troupe
    Website
  • Disabled Sports USA (Sacramento & Truckee/Tahoe areas)
    Website
  • River Cats Independence Field (Sacramento)
    Fully accessible baseball field
    Website
  • Access Leisure (Sacramento Parks & Rec)
    Website
  • Access Adventure (Fairfield)
    Unique program that uses wheelchair accessible horsedrawn carriages to provide open space recreation and wilderness access for people living with the challenges of disability
    Website
  • McAlpine Lake (Central Valley)
    Centrally located between San Jose, Monterey, Salinas and the California Central Valley, McAlpine Lake is accessible all around the whole lake, fishing tourneys and camping available year around. It is small but worth a little fresh air.
    Website
  • Independence Trail (off Highway 49, 7 miles North of Nevada City)
    The nation's first wheelchair accessible wilderness trail and follows the path of gold rush era flumes. From the trailhead you can travel approximately 1.5 miles either east or west. Both directions are level and shady and offer sweeping views from high above the river.
    Website
  • Bay Area Accessible Trails
    A list of accessible trails in the San Francisco Bay Area.
    Website
  • Rails to Trails Conservancy Trail Link (Wheelchair Accessible Trails in California)
    Non-profit organization whose mission it is to create a nationwide network of trails from former rail lines and connecting corridors to build healthier places for healthier people.
    Website
  • AmpSurf
    Non-profit organization made up of amputees, veterans and friends and family of the disabled that provides surf camp.
    Website
  • Shared Adventures of Santa Cruz
    Shared Adventures offers many adaptive adventure activities including kayaking, art classes, surfing, trips to local venues, sailing, indoor rock-climbing, river rafting, dance parties with live music, archery, camping trips, whale watching, bowling, horseback riding, table tenniss and much more.
    Website


Automotive

  • Aero Mobility
    Accessible vehicle provider including rentals
    1001 N. Weir Canyon Rd, Anaheim, CA, 92807
    Website

Education

Advocacy Agencies

 

  • Sacramento Legal Unit
    Disability Rights California
    1831 K Street
    Sacramento, CA 95825-8219
    916-504-5800
    800-504-5802
    Website
    E-Mail: Contact information
  • Bay Area Legal Unit
    1330 Broadway
    Suite 500
    Oakland CA 94612
    510-267-1200
    510-267/-1201 FAX
    Website
  • Office of Patients' Rights
    1831 K Street
    Oakland CA 94612
    510-504-5810
    510-504-5811 FAX
    Website
  • Southern California Area Legal Unit
    350 S Bixel Street
    Suite 290
    Los Angeles CA 90901
    213-213-8000
    213-213-8001 FAX
    Website

  • Yellow Pages for Kids -California Resources
    Provides extensive resources to learn about and navigate special education, including state listings of Parent Training and Information Centers. 
    http://www.yellowpagesforkids.com/help/ca.htm

 

Department of Education

 

Early Intervention Services (Infant and toddler)

  • Prevention and Children Services Branch
    Department of Developmental Services
    1600 9th Street, Room 310
    Sacramento, CA 95814
    916-654-2773
    Website
    E-mail: cdrouin@cde.ca.gov

 

Early Intervention Services (Ages 3 to 5)

  • Department of Education
    Chris Drouin, 619 Coordinator
    1430 N Street
    Sacramento, CA 95814
    916-327-3698
    Website
    E-Mail: cdrouin@cde.ca.gov

 

PTI (Parent Training and Information Centers)

 

Serving: Northern California

 

Serving: Central California

  • Exceptional Parents Unlimited
    4440 N. First St.
    Fresno, CA 93726
    559-229-2000
    559-229-2956 FAX
    Website 
    E-mail:   webform

 

  • Parents Helping Parents of San Francisco
    594 Monterey Blvd.
    San Francisco, CA 94127-2416
    415-841-8820
    E-mail:  sfphp@earthlink.com

 

Serving: Southern California

  • TASK
    100 Cerritos Ave.
    Anaheim, CA. 92805
    714-533-8275
    714-533-2533 FAX
    Website
    E-mail:  taskca@yahoo.com

  • Team of Advocates for Special Kids (TASK)
    4550 Kearny Villa Road, Suite 102
    San Diego, CA 92123
    858-874-2386
    858-874-0123 FAX
    Website
    E-mail:  taskca@yahoo.com

 

College Scholarships

Health and Well Being

State Benefit Programs

  • Disability Benefits 101
    This website provides tools and information on employment, health coverage, and benefits for the state of California
    Website
  • California Children’s Services (CCS)
    Through this state-wide program, children up to 21 years old can get the health care and services they need. CCS will connect you with doctors and trained health care people who know how to care for your child with special health care needs. 
    Website
  • Health Insurance Premium Payment Program
    The Health Insurance Premium Payment (HIPP) program is a voluntary program for qualified beneficiaries with full scope Medi-Cal coverage.  HIPP approved Medi-Cal eligible beneficiaries shall receive services that are unavailable from third party coverage and offered by Medi-Cal. The program may pay health insurance premiums for eligible Medi-Cal participants when deemed cost effective.
    Website



Financial Support

  • United Healthcare Children's Foundation
    Medical Grants to and for families who have children with medical needs not covered or not fully covered by their commercial health benefit plan.

    Website
  • PG&E Medical Baseline Allowance
    For residential customers who have special energy needs related to a medical condition.  Qualification for this program is not income based.
    Apply for Medical Baseline Allowance
  • SMUD medical baseline
    Rate discount program is designed to help customers who have higher electricity costs from running certain energy-intensive medical equipment.
    Apply for medical equipment discount (MED) rate
  • Wheel to Walk Foundation
    The Wheel to Walk Foundation is a non-profit organization that helps children with disabilities, 20 years and younger, obtain medical equipment or services not provided by insurance.
    Website


 

Clinics

  • Children’s Hospital Los Angeles (CHLA) 
    *PPMD CERTIFIED DUCHENNE CARE CENTER
    4650 Sunset Blvd. Los Angeles, CA 90027

    Phone: 323-660-2450
    Website 

  • Forbes Clinic
    2324 Sacramento Street, Suite 150

    San Francisco, CA 94115
    Phone #: (415) 600-3604
    Website

  • UCSF Clinic
    400 Parnassus Avenue, Second Floor

    San Francisco, CA 94143
    Phone #: (415) 353-3682
    Website 

  • Stanford Clinic
    *PPMD CERTIFIED DUCHENNE CARE CENTER300 Pasteur Drive

    Palo Alto, CA 94304
    Phone #: (650) 723-5184
    Website

  • Center for Duchenne Muscular Dystrophy at UCLA  
    *PPMD CERTIFIED DUCHENNE CARE CENTER
    277 Biomedical Sciences

    615 Charles E. Young Dr. S.  Los Angeles, CA 90095
    Phone: 310-983-3402
    Website

  • U.C. Davis Medical Center
    *PPMD CERTIFIED DUCHENNE CARE CENTER
    Physical Medicine & Rehabilitation Clinic

    Lawrence J. Ellison Ambulatory Care Clinic
    Phone #: (916) 734-7041

    Website

 

What California-specific resources would you like to add or update? Comment below! 

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